Seattle area urologists and therapists

[outofpaper]

Any recommendations please? Please PM me if you don't want to say publicly.

I posted on the local referrals forum, but it seems to get way less traffic, so I hope it's OK for me to post here.

[webslave]

As far as uros go, see if he is still available (Richard Berger)
http://depts.washington.edu/uroweb/dire ... erger.html

[outofpaper]

He retired.

[webslave]

They have a good urology department.

[gmccormack]

FYI

I called over there about 2 month ago, spoke with Berger's former assistant and they do not do Botox injections for chronic prostatitis / chronic pelvic pain syndrome anymore, which is shame because I know he had seems some good benefits with this in some patients.

I know on Moldwin's (in NY) site he does intrapelvic Botox injections, likely similar to the ones Berger was doing.

[Jay]

There is also someone in Miami/Coral Gables who does Botox for the pelvic floor. I don't have their name handy, but I'll try to find out via my PT.

[we.the.hulk]

Gmcc
Reading through an earlier post of yours about Botox. Looks like you had consulted someone about it.
Jay and a couple other members were responding to your post and politely trying to dissuade you.
Anyway... I assume you've not tried it, if you are contacting UW about it.
I found this article http://clinicaltrials.gov/ct2/show/NCT00194623
That looked promising. Done in 04 in Seattle (UW). Claims all participants "reported resolution of symptoms."
Anyway. Old study. Any idea why they pulled the plug?
Also. Any reason you have not tried Jerome Weiss.
I'm coming around to your way of thinking. Need some short term relief to get a handle on this thing and practice hitp protocol.
Hopefully heading next month to Sebastopol.

[outofpaper]

hulk, Jerome Weiss is in SFO, not Seattle.

[we.the.hulk]

Oh yeah. I didn't mean to imply he was in Seattle. But gmcc is in Boston (I think), so if he's looking on the west coast, just curious why not check Weiss out. G man is one of the most cerebral guys on the board right now. So, if he's avoiding Weiss, its probably for good reason.
Oh. And nice to meet you outofpaper. Hope you are fighting the good fight!

[gmccormack]

WTH,

I have consulted a few people about it, I don't want to mention specific people. I have researched it in depth, and it seems to be a safe novel treatment. However, that being said, Dr Wise told us that he does not recommend Botox and prefers needle point. I do plan on asking MGH pain clinic about it the near future. I am participating in the Tanezumab trial starting in 3 weeks, so I can't get the treatment during that time (16 weeks), big commitment but hopefully worth it, no doubt anti NGF is the future of pain meds.

More on Botox, I am unsure of the injection site at least for myself, Dr Moldwin says he does "Intrapelvic Botox injections" on his site, not sure where. The study you linked I've read a few times and the bulbospongiosus is an area where I don't have pain. I am going to need to discuss further.

In terms of Jerome Weiss, I think he is a great uro for this condition, Dr Anderson credits him for helping to pioneer the idea of pelvic tension as the cause of CPPS. I don't necessarily know if he's doing anything different than other good uro's though.

There a number of reasons why studies are terminated, sometimes funding gets cut, a patient gets ill, head physician changes hospitals and the hospital refuses to release the funds to the other hospital, the list goes on.

[critthinker]

GM,

I am thinking about trying Botox for CPPS, and was wondering if you've tried it yet. One thing I can say is that Botox completely cured my levator ani syndrome (unfortunately, I acquired an infection from the injection, which led to my pelvic pain).