Search found 10 matches

by European
Wed Jul 15, 2020 1:01 pm
Forum: Research News & Updates
Topic: Botox used to ease pelvic pain
Replies: 25
Views: 4577

Re: Botox used to ease pelvic pain

From what I have read in other forums, there are severe risk of spasms of other muscles, compensating the one which was injected by Botox. So you might shift your pain some inches further or otherwise complicate havoc in your pelvis. But CPPS might be so devastating condition that I understand peopl...
by European
Thu Apr 25, 2019 4:21 pm
Forum: Research News & Updates
Topic: Article in Mens Health
Replies: 2
Views: 1479

Re: Article in Mens Health

Pretty good description on the layman level what's going on...And the relatively sudden onset is also typical.... If I only knew that my pelvis is so endangered I would stretch every day...before the onset.
by European
Wed Apr 10, 2019 8:16 pm
Forum: Therapists, MDs, Clinics and Sites
Topic: Dynamic Contraction Technique DCT Therapy thread
Replies: 47
Views: 7908

Re: Dynamic Contraction Technique DCT Therapy thread

Yes, Mark, but they are not referring to press those "knots" for 30-60 seconds as usual etc....you cannot heal trigger points ("muscle knots") by mere stretching...
by European
Wed Apr 10, 2019 10:15 am
Forum: Therapists, MDs, Clinics and Sites
Topic: Dynamic Contraction Technique DCT Therapy thread
Replies: 47
Views: 7908

Re: Dynamic Contraction Technique DCT Therapy thread

There might be some reasoning behind their methodology, but I feel it is more "sportsman oriented" or how to say it...
Two questionable things in their approach: dismissal of trigger points (they are proven to be real) and unclear mental part of the regimen...
by European
Thu Jan 11, 2018 9:31 am
Forum: Research News & Updates
Topic: Pelvic floor therapy effective for most CPPS patients
Replies: 1
Views: 757

Re: Pelvic floor therapy effective for most CPPS patients

Unfortunately the article is rather general, delivering very few new things and nothing which can be labeled as a break through. We all know that amongst the abysmal record of various CPPS remedies, the PT is one of the better ones. There are 2 major tasks within this field: 1. to make urologists mo...
by European
Wed Jan 04, 2017 1:32 pm
Forum: Research News & Updates
Topic: Male Pelvic Pain: Beyond Urology
Replies: 3
Views: 1305

Re: Male Pelvic Pain: Beyond Urology

"pelvic floor muscle dysfunction, Myofascial pain syndromes, Functional Somatic Syndrome/Central Sensitization Syndromes and/or psychosocial distress" - these are the key components of our suffering. I gave up visits to two of my urologists who were completely laymen in these areas...My PT...
by European
Mon Sep 12, 2016 8:00 am
Forum: Research News & Updates
Topic: Extracorporeal shock-wave therapy and CPPS
Replies: 28
Views: 6455

Re: Extracorporeal shock-wave therapy and CPPS

I tried this modality in 2012, but unfortunately after 1st session it inflicted huge flare-up, so I abandoned further treatment. I consider this approach too risky, there is a lot of delicate structures in the pelvis to be targeted with shock waves.
by European
Fri Jun 10, 2016 9:24 am
Forum: Therapists, MDs, Clinics and Sites
Topic: F-act Pelvic Pain Clinic the Netherlands, my experience
Replies: 12
Views: 3836

Re: F-act Pelvic Pain Clinic the Netherlands, my experience

I basically agree with both of you, Lupita and Alphalifestyle. Pudendal nerve is a part of this havoc, surely it is one of the prominent channels how our pain is transmitted, but rarely is a sole culprit. True PNE does exist, but is very rare and improbable in cases like ours. Other nerves are also ...
by European
Thu Jun 11, 2015 8:06 pm
Forum: Research News & Updates
Topic: The Coming Debate Over Treatment
Replies: 12
Views: 19186

Re: The Coming Debate Over Treatment

Interesting reading, I can agree with most of the texts above. CPPS is clearly multidimensional enemy with various clinical manifestations and diffuse clinical pictures. Exactly this diffuse nature is what is making a kind of distrust between the doctor (mainly urologist) and the patient..helplessne...
by European
Mon Apr 27, 2015 4:39 pm
Forum: Research News & Updates
Topic: Catastrophizing and coping behaviors determine mental quality of life for CPPS patients
Replies: 2
Views: 829

Re: Catastrophizing and coping behaviors determine mental quality of life for CPPS patients

Sure, catastrophizing is one of the most challenging aspects of long term CPPS. It is not easy to find coping strategies because I think it is only a matter of time when, during a bad flare-up, you are overwhelmed by feelings of guilt, helplessness and hopelessness. I get the feeling that you cannot...