Search found 413 matches

by kevin
Sun Aug 31, 2008 5:26 pm
Forum: Research News & Updates
Topic: New drug combo for IC/PBS
Replies: 4
Views: 404

Re: New drug combo for IC/PBS

The cure time of 6-40 hours is extraordinarily short for a treatment that requires you to catheterize yourself. Maybe for women this will be manageable, but it'll be tough to persuade men to cath themselves for this. I would be interested to hear about the definition of the term "cure" as a treatme...
by kevin
Thu Aug 28, 2008 2:44 am
Forum: Research News & Updates
Topic: New drug combo for IC/PBS
Replies: 4
Views: 404

Re: New drug combo for IC/PBS

The cure time of 6-40 hours is extraordinarily short for a treatment that requires you to catheterize yourself. Maybe for women this will be manageable, but it'll be tough to persuade men to cath themselves for this.
by kevin
Sun Aug 24, 2008 3:55 am
Forum: General Discussion
Topic: 2travelers dilemma
Replies: 9
Views: 365

Re: 2travelers dilemma

I have a dilemma. I was going to experiment with the Elmiron and Urocit-K. The problem is my prescription insurance has a donut hole. I am covered the 1st $2500, I have to pay 100% of the next $3300, then the insurance kicks in again. Well, I have reached the insurance donut hole and the Elmiron co...
by kevin
Thu Aug 21, 2008 6:19 am
Forum: Research News & Updates
Topic: Depression/Anxiety in CPPS/IC
Replies: 1
Views: 297

Depression/Anxiety in CPPS/IC

Mental Health Diagnoses in Patients With Interstitial Cystitis/Painful Bladder Syndrome and Chronic Prostatitis/Chronic Pelvic Pain Syndrome: A Case/Control Study. Clemens JQ, Brown SO, Calhoun EA. Department of Urology, University of Michigan Medical Center, Ann Arbor, Michigan (JQC). PURPOSE: We ...
by kevin
Fri Aug 15, 2008 1:09 am
Forum: Clinics, Therapists & Doctors
Topic: Urologist in Central NJ
Replies: 2
Views: 336

Re: Urologist in Central NJ

Can anyone recommend a urologist and or a PT in central New Jersey. I have had issues on and off (mostly on ) for about 4 months. My most troubling symptom is never ending lower abdominal/pelvic pain. I would be willing to travel to NYC or philidelphia if necessary to find someone good. Thanks, Mik...
by kevin
Mon Aug 11, 2008 5:24 am
Forum: General Discussion
Topic: To pee or not to pee
Replies: 3
Views: 380

Re: To pee or not to pee

Bladder training has been used with some success, and a number of experts I know think it's a good idea. However, for me it was too painful to cause myself to sit through that feeling. If you can do it without too much disturbance to your life, it's worth a try.
by kevin
Mon Jul 28, 2008 4:25 am
Forum: Research News & Updates
Topic: Shoskes article on IC/CPPS phenotyping
Replies: 2
Views: 346

Shoskes article on IC/CPPS phenotyping

Clinical phenotyping in chronic prostatitis/chronic pelvic pain syndrome and interstitial cystitis: a management strategy for urologic chronic pelvic pain syndromes. Shoskes DA, Nickel JC, Rackley RR, Pontari MA. Glickman Urological and Kidney Institute, The Cleveland Clinic, Cleveland, OH, USA. Th...
by kevin
Wed Jul 23, 2008 5:20 am
Forum: Research News & Updates
Topic: NIDDK Meeting on Defining the Urologic CPPS - June 16/17
Replies: 11
Views: 648

Re: NIDDK Meeting on Defining the Urologic CPPS - June 16/17

Looks like things are really on the right track!

It's a bit disappointing to see that the MAPP grants have not been awarded yet ... I wonder if there have been delays.
by kevin
Fri Jul 11, 2008 1:23 am
Forum: FAQs and General News
Topic: How do YOU KNOW what you REALLY have?
Replies: 2
Views: 9990

Re: How do YOU KNOW what you REALLY have?

I guess what I'm saying is how do you REALLY REALLY know what you have? I would just be curious for some perspectives. Until you have a positive test for something (e.g. a physical therapist finds trigger points), you don't know. IC, CP, and CPPS are just labels for collections of symptoms that are...
by kevin
Sat Jun 21, 2008 11:09 pm
Forum: Nerve Tx
Topic: Improvement with Botox in bladder
Replies: 1
Views: 525

Improvement with Botox in bladder

I have some good news to report, finally. About a month ago I got a Botox injection. The urologist injected around 100 units of Botox (low dose) into the trigone and external urinary sphincter. The injection was done under general anesthesia with a hydrodistension of the bladder. The doctor also too...
by kevin
Sat Jun 21, 2008 10:53 pm
Forum: Other treatments
Topic: Elmiron Rescue instillation?
Replies: 8
Views: 651

Re: Elmiron Rescue instillation?

My doctor wants to do this. It involves a catheter but I have heard only good things about it online. He wants me to do it once a week...I have not heard a downside and have read 90% effectiveness on wiki. The effectiveness depends on the ingredients used in the instillation. If you look at the rec...
by kevin
Sat Jun 21, 2008 10:44 pm
Forum: Nerve Tx
Topic: ganglion impar/iliohypogastric/illiolingual block
Replies: 3
Views: 599

Re: ganglion impar/iliohypogastric/illiolingual block

I have been suggested to do ganglion impar block, then iliohypogastric followed by illiolingual block Do you mean ilioinguinal block? (in this order of preference if the pain does not resolve). I know that nerve blocks are not preferred and I am also not in a rush to get them. However, the doc tell...
by kevin
Wed Jun 11, 2008 4:29 am
Forum: Clinics, Therapists & Doctors
Topic: Anyone know a trigger point PT in San Francisco?
Replies: 8
Views: 524

Re: Anyone know a trigger point PT in San Francisco?

Does anyone here know a pt that does trigger point work in SF besides Tim Sawyer? Tim is great, and he always helps me, however, his schedule is such that it's hard for me to get in to see him. I would love to find someone in SF that I could go see once a week or so for a while....thanks! S Try cal...
by kevin
Wed Jun 04, 2008 7:00 am
Forum: FAQs and General News
Topic: Jay's FAQ - Updated 12/31/2009
Replies: 1
Views: 8042

Re: Jay's FAQ - Updated 6/2/2008

Excellent post, Jay!
by kevin
Wed Jun 04, 2008 6:58 am
Forum: Research News & Updates
Topic: Hydrodistention + Bladder Training "crucially important"
Replies: 2
Views: 351

Re: Hydrodistention + Bladder Training "crucially important"

Interesting. However, from the abstract it seems that this study doesn't determine how much of the beneficial effect is due to the hydrodistension and how much is due to bladder training. Most studies I have read on hydrodistension conclude that it is not effective (i.e. offers only temporary relief...