Search found 41 matches

by Luxemburger1977
Wed Sep 07, 2016 7:02 pm
Forum: General Discussion
Topic: Amazon Store for recommended products/books etc
Replies: 15
Views: 2984

Re: Amazon Store for recommended products/books etc

On top of HITP, following book was also very usefull to me in the darkest hours of CPPS: Pelvic Pain Explained: What Everyone Needs to Know by Stephanie A. Prendergast, Elizabeth H. Rummer https://www.amazon.com/Pelvic-Pain-Explained-Everyone-Needs/dp/1442248319/ref=sr_1_1?s=sporting-goods&ie=UTF8&q...
by Luxemburger1977
Wed Sep 07, 2016 5:48 pm
Forum: General Discussion
Topic: My story 6 months in - input appreciated
Replies: 67
Views: 4752

Re: My story 6 months in - input appreciated

Hi da0092, I started PT months ago (first session was before Xmas last year) but I went to see Bill Taylor for some extra advice or reassurance perhaps in early April and I still have mixed feelings about the 2 appointments we had back then. He surely is very compassionate, told me he'd seen many me...
by Luxemburger1977
Wed Sep 07, 2016 4:58 pm
Forum: General Discussion
Topic: Pain/discomfort from pelvis to ... left hamstrings / QUADRICEPS ???
Replies: 9
Views: 258

Re: Pain/discomfort from pelvis to ... left hamstrings / QUADRICEPS ???

Well, my pelvic floor was in a nasty state of spasm but it took no more than 8 sessions/weeks + home diaphragmatic breathing/pelvic floor relaxation for all urinary issues to resolve altogether and not to return a single time ever since. It could take more time for pain to resolve though; however, m...
by Luxemburger1977
Wed Sep 07, 2016 1:48 pm
Forum: General Discussion
Topic: Pain/discomfort from pelvis to ... left hamstrings / QUADRICEPS ???
Replies: 9
Views: 258

Re: Pain/discomfort from pelvis to ... left hamstrings / QUADRICEPS ???

Well, with such localised pain, I would not have thought about it really ... I am actually doing better as months go by so let's pray it goes on this way :smile:
by Luxemburger1977
Tue Sep 06, 2016 11:40 pm
Forum: General Discussion
Topic: Pain/discomfort from pelvis to ... left hamstrings / QUADRICEPS ???
Replies: 9
Views: 258

Re: Pain/discomfort from pelvis to ... left hamstrings / QUADRICEPS ???

Thanks webslave! I will first discuss this with PT and the other guy (PT) giving me dry needling as well and ask them to have a closer look at my spine. Charcot-Marie-Tooth disease seems to be hereditary, no condition in my family, so more or less excluded, but myofascial pain originating from furth...
by Luxemburger1977
Tue Sep 06, 2016 10:30 pm
Forum: General Discussion
Topic: Pain/discomfort from pelvis to ... left hamstrings / QUADRICEPS ???
Replies: 9
Views: 258

Re: Pain/discomfort from pelvis to ... left hamstrings / QUADRICEPS ???

Well, as a matter of fact, an orthopaedist experienced in myofascial pain syndromes I saw back in April suggested I should have a spinal MRI with a suspicion of sacroiliitis (inflammation of sacroiliac joints) and/or disc prolapse. However, we talked no longer than 15 minutes, he told me that my add...
by Luxemburger1977
Tue Sep 06, 2016 8:18 pm
Forum: General Discussion
Topic: Pain/discomfort from pelvis to ... left hamstrings / QUADRICEPS ???
Replies: 9
Views: 258

Pain/discomfort from pelvis to ... left hamstrings / QUADRICEPS ???

Hi all, After months of PT (see signature for details), I am definitely doing better: urinary hesitancy/urgency left for good months ago now (also stopped Flomax at that time), pain with sitting getting better as months pass and PT targetting one muscle after another. However, symptoms, pain and dis...
by Luxemburger1977
Fri Sep 02, 2016 9:42 pm
Forum: General Discussion
Topic: Sex Toy
Replies: 43
Views: 2194

Re: Sex Toy

My advice to you: forget about the pudendal nerve and, to me, if there is anything you should worry about right now is how useful Cymbalta is to you and how quickly you should quit if it is not! Simply google Cymbalta together with "side effects" and/or "withdrawal" and you will get the picture :sho...
by Luxemburger1977
Thu Sep 01, 2016 10:50 pm
Forum: General Discussion
Topic: Sex Toy
Replies: 43
Views: 2194

Re: Sex Toy

Hi Worried123, Unless your PT did find irritation of the pudendal nerve proper (and there should be no "nerve pain" at all, just only musculoskeletal impairments), perhaps I would think twice before continuing strong medication like Cymbalta. I was put on that as soon as my GP identified "depression...
by Luxemburger1977
Fri Aug 26, 2016 10:14 pm
Forum: General Discussion
Topic: In continental Europe, Dr Helga Pohl
Replies: 2
Views: 261

Re: In continental Europe, Dr Helga Pohl

Hi all, The greatest suffering I have experienced in my life so far has been treated for 8 months now by a therapist trained by Dr Helga Pohl and my condition has been improving month after month, although I still have quite a way to go I guess. But I was lucky enough to start therapy before it got ...
by Luxemburger1977
Mon Aug 22, 2016 9:38 pm
Forum: Clinics, Therapists & Doctors
Topic: F-act Pelvic Pain Clinic the Netherlands, my experience
Replies: 10
Views: 859

Re: F-act Pelvic Pain Clinic the Netherlands, my experience

Hi Lupita, Hi all, As a matter of fact, I live close to Germany and found very good treatment so far with Dr Pohl PT-type body therapy and I am so glad I found it and got an appointment early enough in the process, otherwise I have no idea where I would be today and what kind of hard stuff medicatio...