Search found 41 matches

by Luxemburger1977
Wed Oct 19, 2016 9:50 pm
Forum: Research News & Updates
Topic: Extracorporeal shock-wave therapy and CPPS
Replies: 11
Views: 855

Re: Extracorporeal shock-wave therapy and CPPS

Hi CMT23, Don't feel sorry for my rather unlucky experience with ESWT. I have found my luck with PT and dry needling and I have been doing better. This is to say there is still some way to go but I found therapy that works for me and I am confident I will get symptom-free in a few months' time. Back...
by Luxemburger1977
Tue Oct 18, 2016 8:22 pm
Forum: Research News & Updates
Topic: Extracorporeal shock-wave therapy and CPPS
Replies: 11
Views: 855

Re: Extracorporeal shock-wave therapy and CPPS

Hi CMT23, I can certainly post more information on this doctor. However, I am not sure how far ESWT (pretty expensive treatment by the way) was helpful for me. As I previously wrote, I only felt slight improvement and I have come to the conclusion that dry needling has proved more (cost-)effective s...
by Luxemburger1977
Wed Oct 12, 2016 3:34 pm
Forum: Muscle Spasm & Anxiety Tx
Topic: Dry Needling
Replies: 16
Views: 856

Re: Dry Needling

At the moment, I am having dry needling up to twice a week (to speed up recovery) for left quadriceps (rectus femoris) and left glutes. I have found a very knowledgeable PT dry needling most trigger points only once for them not to come back. To me the best combination has been manual therapy with d...
by Luxemburger1977
Tue Oct 11, 2016 10:05 pm
Forum: Muscle Spasm & Anxiety Tx
Topic: Topical baclofen
Replies: 4
Views: 492

Re: Topical baclofen

Pain doctor from "Rehazenter" has never heard of topical baclofen and won't give it a try :sad: However, the addictologist I have been seeing for benzodiazepine withdrawal also has a specialisation into and experience in baclofen for alcohol abuse and promised he would inquire into topical baclofen ...
by Luxemburger1977
Sun Oct 09, 2016 3:24 pm
Forum: General Discussion
Topic: My story 6 months in - input appreciated
Replies: 67
Views: 3975

Re: My story 6 months in - input appreciated

Hi da0092, If you ask me, Dr Pohl (Germany) PT-type body therapy and dry needling have been the cornerstone of my recovery. I was lucky to find help close enough to home and I feel I must be about 70% of the way by now. Progress has been really slow but steady, with no flare as such and above all no...
by Luxemburger1977
Mon Sep 26, 2016 7:20 pm
Forum: Nerve Tx
Topic: Nerve Cryoablation for pelvic pain...
Replies: 6
Views: 418

Re: Nerve Cryoablation for pelvic pain...

Well, unfortunately, women have so many more reasons to develop pelvic pain and, while treatment is probably easier for men, it seems it can be a real challenge for some women out there to find appropriate treatment. I think ketamine has to be seen as a sort of last resort option in medication befor...
by Luxemburger1977
Fri Sep 23, 2016 4:42 pm
Forum: Nerve Tx
Topic: Nerve Cryoablation for pelvic pain...
Replies: 6
Views: 418

Re: Nerve Cryoablation for pelvic pain...

Some more info here: http://www.pelvicpainrehab.com/pudendal-nerve-entrapment/4091/cryotherapy-effective-treatment-pudendal-neuralgia/ How about ketamine infusions? Seems to be effective and non-invasive, although you have to plan six sessions over two weeks, then a refresher once in a while to keep...
by Luxemburger1977
Thu Sep 22, 2016 7:44 pm
Forum: Muscle Spasm & Anxiety Tx
Topic: Topical baclofen
Replies: 4
Views: 492

Topical baclofen

Hi all! With ongoing symptoms, I am willing to try out anything that could help and bring temporary relief. Oral baclofen is known to have side-effects, ranging from mild to severe, but topical baclofen, as an ointment or cream is a (far less common) but interesting option :smile: Anyone out there e...
by Luxemburger1977
Thu Sep 15, 2016 7:52 pm
Forum: General Discussion
Topic: Sex Toy
Replies: 43
Views: 1675

Re: Sex Toy

PT usually brings (very) good results and has no side-effets at all. If abdominal pain is also caused by trigger points, PT is the way to go to get rid of pain before exploring other options. I had pelvic MRI and even sigmoidoscopy, recommended to check any other issues, and both were just a waste o...
by Luxemburger1977
Wed Sep 14, 2016 7:54 pm
Forum: General Discussion
Topic: Sex Toy
Replies: 43
Views: 1675

Re: Sex Toy

"Skilfully" used is the way they word it if I remember right. Otherwise, I fully share your concerns, currently withdrawing from Valium myself :mad: But after only a few months on and off use, slow withdrawal seems to cause only minor issues other that insomnia ...
by Luxemburger1977
Wed Sep 14, 2016 7:08 pm
Forum: Muscle Spasm & Anxiety Tx
Topic: Bad experience with baclofen
Replies: 5
Views: 662

Re: Bad experience with baclofen

Of course every patient is different, baclofen just turned out to be a bad choice for me. But I guess I wouldn't have known unless I'd tried it. I am now taking a "benzo (benzodiazepine) weekend" while waiting for the baclofen to leave my system and any possible withdrawal effect to stop. Hi websla...
by Luxemburger1977
Wed Sep 14, 2016 6:58 pm
Forum: General Discussion
Topic: Sex Toy
Replies: 43
Views: 1675

Re: Sex Toy

Tramadol seems to be helpuful to most sufferers, it was not to me though :sad: How about you drop the Cymbalta and give the occasional benzodiazepine a try? :smile: Wise and Anderson also advocate the occasional use of Valium or any other benzo you are comfortable with. They all work as muscle relax...
by Luxemburger1977
Mon Sep 12, 2016 3:36 pm
Forum: Research News & Updates
Topic: Extracorporeal shock-wave therapy and CPPS
Replies: 11
Views: 855

Re: Extracorporeal shock-wave therapy and CPPS

It did not bring any major improvement for me but the fact is: you have to find someone who is able to use ESWT properly. I got treatment from a very knowledgeable specialist in Munich earlier this year and he first checked to find the muscles he had to target in priority. Contrary to the way it is ...
by Luxemburger1977
Wed Sep 07, 2016 11:00 pm
Forum: General Discussion
Topic: My story 6 months in - input appreciated
Replies: 67
Views: 3975

Re: My story 6 months in - input appreciated

Never had any pain with it, nothing at all. I really feel it never had any impact, neither hours later, nor 24/48 hours later. Masturbation, even up to a few times a day, a few times a week, made no difference at all, except perhaps slowly tensing the pelvic floor somewhat more, which, in turn, impa...
by Luxemburger1977
Wed Sep 07, 2016 9:28 pm
Forum: General Discussion
Topic: My story 6 months in - input appreciated
Replies: 67
Views: 3975

Re: My story 6 months in - input appreciated

Everybody has their own story and symptoms I guess, depending which muscles are impaired. I remember being off-work, feeling so ill and bedridden last year from Mid-November until Xmas and could wank a few times a day watching porn, no pain whatsoever after ejaculation and not even retrograde ejacul...