Search found 117 matches

by European
Fri Jan 06, 2017 1:50 pm
Forum: General Discussion
Topic: My CPPS Stories and Experience’s
Replies: 45
Views: 3638

Re: My CPPS Stories and Experience’s

Hallo Chriss, I re-read thoroughly your story, there is a lot of similarities in my case (as well as in many other cases of co-sufferers). My case also started 7 years ago with prolonged sex/masturbation with a lot of clenching/edging etc...I have had very good September/October but since New Year I...
by European
Thu Jan 05, 2017 1:09 pm
Forum: General Discussion
Topic: Heal Pelvic Pain book
Replies: 5
Views: 382

Re: Heal Pelvic Pain book

I have read the book some years ago. It is good from solely PT point of view, but AHIP is much more complex especially from the holistic point of view. Reading AHIP means reading the text from somebody who knows all the avenues of CPPS, reading Heal the pelvic pain means you have good overview of ph...
by European
Wed Jan 04, 2017 1:32 pm
Forum: Research News & Updates
Topic: Male Pelvic Pain: Beyond Urology
Replies: 3
Views: 808

Re: Male Pelvic Pain: Beyond Urology

"pelvic floor muscle dysfunction, Myofascial pain syndromes, Functional Somatic Syndrome/Central Sensitization Syndromes and/or psychosocial distress" - these are the key components of our suffering. I gave up visits to two of my urologists who were completely laymen in these areas...My PT is much b...
by European
Fri Nov 04, 2016 10:35 am
Forum: General Discussion
Topic: Stopping pelvic floor therapy and stretching actually made things better...
Replies: 69
Views: 3223

Re: Complete randomness of pelvic pain?

I agree with the assumption that psychological aspects, especially anxiety/depression related elements play huge role in the struggling with CPPS. The longer you are struggling with CPPS the more the psychological components might become dominant or being a sole driver in this difficult road. But - ...
by European
Thu Nov 03, 2016 11:24 am
Forum: General Discussion
Topic: My story - support/advice appreciated
Replies: 18
Views: 718

Re: My story - support/advice appreciated

Post ejaculation pain is one of the worst hallmarks of CPPS and this is also the way how my problems started. It is very difficult to stay relaxed during orgasm and it is difficult to "re-programme" mind and body in this direction. Ejaculation induces major spasms of pubococcygeus and ischiocavernos...
by European
Wed Oct 12, 2016 11:14 am
Forum: Muscle Spasm & Anxiety Tx
Topic: Dry Needling
Replies: 16
Views: 1028

Re: Dry Needling

I tried Dry needling 3 times in the past and considering next session in November. I have got a feeling that initial two sessions lightly helped (effect was apparent after 3-4 days), but the last one seemed to worsen things. I think that my most prominent trigger points are in the pubococcygeus/leva...
by European
Mon Oct 10, 2016 1:04 pm
Forum: General Discussion
Topic: Starting pelvic treatment after 4 and a half years
Replies: 66
Views: 3982

Re: Starting pelvic treatment after 4 and a half years

Carbonevo you are basically right that psychological background/anxiety is playing one of the prime roles in this havoc, I agree with you. The initial onset was inflicted by muscular injury/spasm and all this psychological vicious circle of depression/anxiety/catastrophic thinking did not enable the...
by European
Sun Oct 09, 2016 8:32 pm
Forum: General Discussion
Topic: Starting pelvic treatment after 4 and a half years
Replies: 66
Views: 3982

Re: Starting pelvic treatment after 4 and a half years

I am tryiing to resume exercising depicted in Headache in the pelvis, but still struggling....
by European
Sun Oct 09, 2016 6:41 pm
Forum: General Discussion
Topic: Starting pelvic treatment after 4 and a half years
Replies: 66
Views: 3982

Re: Starting pelvic treatment after 4 and a half years

Yes of course, last 3 years I am doing intrarectal PT approximately once in a month. It helped a lot but did not eradicate flare-ups completely. Overall I am doing better but I am far from being cured. My most stubborn trigger points are probably in anterior pelvis, somewhere near pubbococcyges, bul...
by European
Sun Oct 09, 2016 3:48 pm
Forum: General Discussion
Topic: Starting pelvic treatment after 4 and a half years
Replies: 66
Views: 3982

Re: Starting pelvic treatment after 4 and a half years

JuanMilo, I can relate to the notion of kegeling/edging being the initial factor of CPPS. My CPPS started exactly that way and it took a lot of time to me to consider that not the multiple orgasm but the edging/clenching which I was used to for many years was most probably the main factor. My proble...
by European
Sat Oct 08, 2016 5:00 pm
Forum: General Discussion
Topic: My Story
Replies: 16
Views: 909

Re: My Story

Agree with other guys, we have to keep fighting. All feelings you have mentioned are very familiar to me...those cruel mornings when you wake up with pain and know that this day it will be only worse...and you have to endure 8 hours of work...depression of huge flare-ups...after great summer I am st...
by European
Sat Oct 08, 2016 1:25 pm
Forum: General Discussion
Topic: My story 6 months in - input appreciated
Replies: 67
Views: 5098

Re: My story 6 months in - input appreciated

I had always questions trigger points not referring pain into my most troublesome parts - shaft of the penis and base of the penis. My explanation is that the trigger points responsible for this painful feelings are pretty deep in pubbococcygeus area - so it is hit and miss always, my PT is not able...
by European
Mon Sep 12, 2016 8:00 am
Forum: Research News & Updates
Topic: Extracorporeal shock-wave therapy and CPPS
Replies: 16
Views: 1269

Re: Extracorporeal shock-wave therapy and CPPS

I tried this modality in 2012, but unfortunately after 1st session it inflicted huge flare-up, so I abandoned further treatment. I consider this approach too risky, there is a lot of delicate structures in the pelvis to be targeted with shock waves.
by European
Mon Sep 12, 2016 7:05 am
Forum: General Discussion
Topic: 6 years with CPPS
Replies: 72
Views: 5295

Re: 6 years with CPPS

Thank you Carbonevo for your insights, I will surely study Sarno work in detail. Anxiety plays major role in my case I guess. Now I am feeling pretty miserable again, mainly due to effect of cryotherapy, I read that is is good for better blood flow etc,, but it must inflict heavy spasms in my pelvis...
by European
Sun Sep 11, 2016 10:44 am
Forum: General Discussion
Topic: 6 years with CPPS
Replies: 72
Views: 5295

Re: 6 years with CPPS

Here is small update of my case: Generally I had very good - partly great - period from late June till early September. Approximately 10 weeks without any flare-up, days with some portion of bearable muscular pain were interchanging with days of only minor discomfort. I had nice three weeks at sea, ...