Search found 107 matches

by European
Sat Oct 08, 2016 5:00 pm
Forum: General Discussion
Topic: My Story
Replies: 16
Views: 791

Re: My Story

Agree with other guys, we have to keep fighting. All feelings you have mentioned are very familiar to me...those cruel mornings when you wake up with pain and know that this day it will be only worse...and you have to endure 8 hours of work...depression of huge flare-ups...after great summer I am st...
by European
Sat Oct 08, 2016 1:25 pm
Forum: General Discussion
Topic: My story 6 months in - input appreciated
Replies: 67
Views: 3954

Re: My story 6 months in - input appreciated

I had always questions trigger points not referring pain into my most troublesome parts - shaft of the penis and base of the penis. My explanation is that the trigger points responsible for this painful feelings are pretty deep in pubbococcygeus area - so it is hit and miss always, my PT is not able...
by European
Mon Sep 12, 2016 8:00 am
Forum: Research News & Updates
Topic: Extracorporeal shock-wave therapy and CPPS
Replies: 11
Views: 853

Re: Extracorporeal shock-wave therapy and CPPS

I tried this modality in 2012, but unfortunately after 1st session it inflicted huge flare-up, so I abandoned further treatment. I consider this approach too risky, there is a lot of delicate structures in the pelvis to be targeted with shock waves.
by European
Mon Sep 12, 2016 7:05 am
Forum: General Discussion
Topic: 6 years with CPPS
Replies: 59
Views: 3583

Re: 6 years with CPPS

Thank you Carbonevo for your insights, I will surely study Sarno work in detail. Anxiety plays major role in my case I guess. Now I am feeling pretty miserable again, mainly due to effect of cryotherapy, I read that is is good for better blood flow etc,, but it must inflict heavy spasms in my pelvis...
by European
Sun Sep 11, 2016 10:44 am
Forum: General Discussion
Topic: 6 years with CPPS
Replies: 59
Views: 3583

Re: 6 years with CPPS

Here is small update of my case: Generally I had very good - partly great - period from late June till early September. Approximately 10 weeks without any flare-up, days with some portion of bearable muscular pain were interchanging with days of only minor discomfort. I had nice three weeks at sea, ...
by European
Sat Sep 10, 2016 3:10 pm
Forum: General Discussion
Topic: My story 6 months in - input appreciated
Replies: 67
Views: 3954

Re: My story 6 months in - input appreciated

I can agree with the comment of webslave, that post-ejaculation pain onset might be 24, even 48 hours later. That was very misleading for me in the beginning, but now I see clear interlinkage there. Ejaculation is kind of neuromuscular mini-insult for pelvic nerves and muscles and impact might be se...
by European
Sat Sep 10, 2016 3:03 pm
Forum: General Discussion
Topic: 6 years with CPPS
Replies: 59
Views: 3583

Re: 6 years with CPPS

Thanky you Carbonero for your inputs, you might be right, there is a lot of anxiety-depression background there, my case inclusive. I know some general info about Sarno, but did not study him thoroughly. Back to my current situation: I had 10 almost great weeks, with full summer life with relax, swi...
by European
Sun Jun 19, 2016 3:31 pm
Forum: General Discussion
Topic: 6 years with CPPS
Replies: 59
Views: 3583

Re: 6 years with CPPS

Maybe some additional thoughts from me regarding my status quo: 1. CPPS hit me when I was 35 years old, so pretty typical stage of onset. Of course, CPPS is my major health battle in my life, but I have some experiences with somehow similar struggle - TMJ disorder. I was suffering with temporomandib...
by European
Fri Jun 10, 2016 9:24 am
Forum: Clinics, Therapists & Doctors
Topic: F-act Pelvic Pain Clinic the Netherlands, my experience
Replies: 10
Views: 749

Re: F-act Pelvic Pain Clinic the Netherlands, my experience

I basically agree with both of you, Lupita and Alphalifestyle. Pudendal nerve is a part of this havoc, surely it is one of the prominent channels how our pain is transmitted, but rarely is a sole culprit. True PNE does exist, but is very rare and improbable in cases like ours. Other nerves are also ...
by European
Mon Jun 06, 2016 10:01 am
Forum: General Discussion
Topic: 6 years with CPPS
Replies: 59
Views: 3583

Re: 6 years with CPPS

I think it is time for small update before the summer. Here are my thoughts: 1. Still struggling, bad periods are interchanging with good ones. I had very tough April and first half of May then approximately 3 weeks of significant improvement followed. Now I have mild worsening, yesterday and today,...
by European
Mon Jun 06, 2016 9:42 am
Forum: General Discussion
Topic: 4 years of fighting, changes and hope
Replies: 13
Views: 610

Re: 4 years of fighting, changes and hope

The varicose vein should not be factor pressing to the nerves, because veins are not from hard body. But general problems with pelvic myoneuropathy, pudendal neuralgia etc. are frequently coinciding with varicose pelvic veins. Unfortunately, there is no surgical cure, the surgical repair has pretty ...
by European
Mon Jun 06, 2016 8:14 am
Forum: Muscle Spasm & Anxiety Tx
Topic: Internal trigger point release: be careful with pressing the pudendal nerve
Replies: 5
Views: 839

Re: Internal trigger point release: be careful with pressing the pudendal nerve

It is difficult to say, but in most cases the stretches are important part of improvement. Dysfunction of muscles is often due to their shortening and stretching is the only way how to reverse this process. But everybody is different, in the first year of my CPPS problems, I did not do any PT exerci...
by European
Sun May 15, 2016 2:32 pm
Forum: General Discussion
Topic: 4 years of fighting, changes and hope
Replies: 13
Views: 610

Re: 4 years of fighting, changes and hope

So webslave, do you think that having the pelvic pain without significant urinary problems is pretty often? or is it seldom?
by European
Sat May 14, 2016 11:53 am
Forum: General Discussion
Topic: 4 years of fighting, changes and hope
Replies: 13
Views: 610

Re: 4 years of fighting, changes and hope

Hallo Gran Torino, yes, you are my neighbour :-)...you see, CPPS has its branches in every country :-) My pain profile is very similar to yours: pain in perineum, groin, shaft of the penis and base of the penis - these are the 4 most problematic areas for me. Especially this side penis pain is somet...
by European
Thu May 12, 2016 5:58 pm
Forum: General Discussion
Topic: Webslave, guys.. pls have the time to read my story
Replies: 12
Views: 960

Re: Webslave, guys.. pls have the time to read my story

Carbonevo, thank you for the contact, I might see her...but I definitely think that this PT guy from Brno is superior over her...he has a lot of PT experience from Germany and wrote a book about Coccyx pain syndrome...so definitely a go to guy... I was also experimenting with Tramadol, but now I am ...