Search found 107 matches

by European
Sun Jun 04, 2017 9:10 am
Forum: General Discussion
Topic: Six years after (ppp's case)
Replies: 116
Views: 4898

Re: Six years after (ppp's case)

I report similar experience, masturbation is for flare-up much more detrimental than sex. I had worst flare-up after longer masturbation sessions with a lot of clenching/edging..In that times I did not know that clenching is much more dangerous for CPPS flare-up than ejaculation itself. My pubococcy...
by European
Sun Jun 04, 2017 8:42 am
Forum: General Discussion
Topic: My story 6 months in - input appreciated
Replies: 67
Views: 4694

Re: My story 6 months in - input appreciated

Hallo da0092, I have read that you had the problems with adductor magnus. This seems also be one of the main problem areas in my case, especially on the right side. My PT confirmed that and the spot where adductors is attaching the pelvis was one of the first pain spots back in the beginning of my p...
by European
Wed May 10, 2017 2:02 pm
Forum: General Discussion
Topic: My CPPS Stories and Experience’s
Replies: 45
Views: 3242

Re: My CPPS Stories and Experience’s

Hallo Chriss, I know that feeling very well, I mean having inflammation pain without classical trigger points related pain patterns...I still have similar anxious ideas, because both of my PT failed to find some trigger points which would reproduce my main pain pattern (but I had positive effect fro...
by European
Wed May 03, 2017 7:35 pm
Forum: Pain Management Tx
Topic: Has anyone tried ketamine infusion
Replies: 3
Views: 440

Re: Has anyone tried ketamine infusion

I also consider Ketamin a promising agent in CPPS treatment, especially in torpid cases but generally the doctors are not very willing to do it...
by European
Sun Apr 30, 2017 7:40 pm
Forum: General Discussion
Topic: Daily almost constant pain
Replies: 24
Views: 1250

Re: Daily almost constant pain

I had same problems with finding a qualified PT here...I am going once monthly to Brno, Czech republic (it is cca 120km from my home) and once yearly to Sumperk (also Czech republic) for Dry Needling. I hav had positive effects from intrarectal PT, but not so much from Dry needling. I also had 2 ner...
by European
Sun Apr 30, 2017 1:13 pm
Forum: General Discussion
Topic: Daily almost constant pain
Replies: 24
Views: 1250

Re: Daily almost constant pain

Hallo Sebylla, I thoroughly re-read your story, battling with similar problems for several years. I would like to ask you which kind of steroid block did you have? And what was the outcome? My case is similar in that aspect, that I also underestimated for many years important contributing factors, e...
by European
Sun Apr 30, 2017 10:19 am
Forum: General Discussion
Topic: 6 years with CPPS
Replies: 61
Views: 4284

Re: 6 years with CPPS

Thanks for the feedback. It was/is candida (confirmed by doctor) but I agree that is is not the main trigger, but rather contributing factor. And yes, you are right that this overanalysing and catastrophic thinking is worsening the situation...but sometimes it is difficult to deal with it, especiall...
by European
Fri Apr 28, 2017 4:32 pm
Forum: General Discussion
Topic: 6 years with CPPS
Replies: 61
Views: 4284

Re: 6 years with CPPS

Maybe one more remark: my PT and I quarrelled a bit about whether I do have neuropathic pain...he was defending the statement that if I don't have classic neuropathic pain - stabbing, shooting, electric-like..(which I don't have), my case is not primarily neuropathic. My "normal" pain has some burni...
by European
Fri Apr 28, 2017 3:39 pm
Forum: General Discussion
Topic: 6 years with CPPS
Replies: 61
Views: 4284

Re: 6 years with CPPS

I don't think that this technique (PENS with Dry needling) will be some major break-through in my case. It is 5th day after treatment and I am still rather sore, my pelvic nerves are angry and feel a lot of allodynia. The classical approach (trigger points eradication+relaxation) seems to be more su...
by European
Thu Apr 27, 2017 6:58 pm
Forum: General Discussion
Topic: Pyramidalis anyone?
Replies: 4
Views: 393

Re: Pyramidalis anyone?

Crooked erection (as well as temporary low quality of erection) to one side might be influenced by trigger points in ischiocavernosus. Suspensory penile ligaments (pubic area) is one of the most troublesome areas in my case, highlighted allodynia makes sometimes a day in long trousers real inferno.....
by European
Thu Apr 27, 2017 5:28 pm
Forum: General Discussion
Topic: Pyramidalis anyone?
Replies: 4
Views: 393

Re: Pyramidalis anyone?

Hallo, my pain areas are very similar to yours. I guess there might be trigger points in m. rectus abdominis, which are prone to refer pain to shaft of penis, uretra etc. Whole pubic area is very painful also for me, but I consider that to be secondary pain to the initial spots somewhere deep in pel...
by European
Wed Apr 26, 2017 2:32 pm
Forum: General Discussion
Topic: 6 years with CPPS
Replies: 61
Views: 4284

Re: 6 years with CPPS

Time to give a small update: 4.4. I was at my regular PT (dr. M) who made extensive check-out of whole pelvis. I was in significant pain (more than 1 month at that time) and told him to concentrate to the anterior portion of pubococcygeus where I assumed to have nasty trigger point. Unfortunately, d...
by European
Mon Apr 10, 2017 2:01 pm
Forum: Mental Health Problems
Topic: How many people here had Panic Attacks before CPPS?
Replies: 24
Views: 1572

Re: How many people here had Panic Attacks before CPPS?

I am probably next one in the range of those who have relation between their CPPS and anxiety disorders. First 25 years of my life I had a lot of anxious feelings but they did not manifest in the somatoform disorders. Then I started to have TMJ problems and atypical facial pain. A lot of visits to d...
by European
Thu Apr 06, 2017 5:44 pm
Forum: Surgery, Injections, WIT, TURP, TUIP etc
Topic: Inguinal hernia surgery....
Replies: 7
Views: 786

Re: Inguinal hernia surgery....

Neis, if I might ask you, how are doing? Hope that you are better...
by European
Wed Apr 05, 2017 1:15 pm
Forum: General Discussion
Topic: 6 years with CPPS
Replies: 61
Views: 4284

Re: 6 years with CPPS

Maybe it is time for small update in my odyssey with CPPS. Second half of the year 2016 was neither great not completely miserable, better days were interchanging with worse. In the New Year time I had a short but intensive flare-up lasting cca 10 days. Then very good 2 months with some bearable pai...