Search found 118 matches

by European
Wed May 27, 2015 12:25 pm
Forum: General Discussion
Topic: 6 years with CPPS
Replies: 72
Views: 5342

Re: 6 years with CPPS

I dont believe that allodynia is main diagnosis, but might play a role in this havoc (as well as fibromyalgia, central senzitization etc.). General pelvic myoneuropathia with irritation of pudendal nerve is the most probable diagnosis. A lof mental aspects is also involved.
by European
Tue May 26, 2015 2:09 pm
Forum: Urgency & Frequency
Topic: NO frequency issues?
Replies: 8
Views: 517

Re: NO frequency issues?

I also have only very minor urinary issues (weaker stream). ONly concern is chronic urogenital pain...
by European
Tue May 26, 2015 12:41 pm
Forum: General Discussion
Topic: 6 years with CPPS
Replies: 72
Views: 5342

Re: 6 years with CPPS

This delayed pain initiated my investigation of pudendal neuropathy because delayed pain is sometimes a sign of neuralgic pain. Sometimes my pain started even 48 hours after the trigger (ejaculation). But when I consulted this issue with pelvic neurologist I was told that in case of pelvic pain it i...
by European
Tue May 26, 2015 11:53 am
Forum: General Discussion
Topic: How to explain to people...
Replies: 6
Views: 358

Re: How to explain to people...

Great letter involving all the essential things. Exactly know the feeling when you are totally worn out from the pain and dont have any words...
by European
Mon May 25, 2015 5:19 pm
Forum: General Discussion
Topic: 6 years with CPPS
Replies: 72
Views: 5342

Re: 6 years with CPPS

Thank you guys (Webslave and Caeder) for commenting my issues, I appreciate the insights of CPPS veterans. I truly believe that my case is complicated by the fact that I started PT cca 2-3 years after onset of symptoms. First year my symptoms completely vanished, before flaring up again. In most cas...
by European
Thu May 21, 2015 5:24 pm
Forum: Muscle Spasm & Anxiety Tx
Topic: Where each trigger points refer
Replies: 3
Views: 860

Re: Where each trigger points refer

I have similar problems, hard flaccid (changing..), tight penis inside the body, feeling of penis being pulled from right side, pain in the dorsal areas of penis, pain in ischiocavernosus...etc. Sometimes really bad pain behind the penis, more right then left, like having hard concrete lump inside m...
by European
Thu May 21, 2015 5:19 pm
Forum: Muscle Spasm & Anxiety Tx
Topic: Painful area above pubic bone / skin rolling / massage
Replies: 20
Views: 1550

Re: Painful area above pubic bone / skin rolling / massage

I have also painful trigger point in at the base of penis, in the pubic area...The most effective tool was dry needling focused on muscle rectus abdominis, it helped a lot, but during current flare up the pain is back. Dorsal aspects of penis (one of my problem areas) seem to be a result of trigger ...
by European
Thu May 21, 2015 2:43 pm
Forum: General Discussion
Topic: The story so far (caedar's case)
Replies: 84
Views: 3910

Re: The story so far (caedar's case)

Caedar, I thoroughly read your story, which is in many aspects similar to mine. Heavily struggling with pain in the area of ischiocavernosus muscles, penile shaft, groin region etc. No anal pain and very mild urinary symptoms (split stream, weaker stream, but no pain in urethra...). How could you tr...
by European
Thu May 21, 2015 2:37 pm
Forum: General Discussion
Topic: 6 years with CPPS
Replies: 72
Views: 5342

Re: 6 years with CPPS

Thank you for feedback, webslave. I am not misled by PNE agenda, I know that I don't have classic entrapment in the Alcock or elsewhere higher, because my pain is not positional, sitting is mildly worsening the pain, but no devastating impact. My penile dorsal nerve might be detrimentally irritated ...
by European
Tue May 19, 2015 6:40 pm
Forum: General Discussion
Topic: 6 years with CPPS
Replies: 72
Views: 5342

6 years with CPPS

Well it's been the 6th anniversary of my CPPS story – time to share my experiences and yield a possible feedback from you. The first signs of my pain are dating back to May 2009 – after prolonged sex with multiple orgasms and a lot of "edging" and delaying orgasms I felt discomfort/pain in the base ...
by European
Tue May 19, 2015 2:44 pm
Forum: General Discussion
Topic: jg6075's Case/Rambling Story
Replies: 38
Views: 3218

Re: jg6075's Case/Rambling Story

The copying with flare-ups is one of the most challenging tasks in this struggle...I perfectly know this feeling of emptiness when a bad flare-up strikes back after quite successful period of recovery/better time...Sometimes it seems that all the effort was waste...I had very good first four months ...
by European
Mon Apr 27, 2015 4:39 pm
Forum: Research News & Updates
Topic: Catastrophizing and coping behaviors determine mental quality of life for CPPS patients
Replies: 2
Views: 510

Re: Catastrophizing and coping behaviors determine mental quality of life for CPPS patients

Sure, catastrophizing is one of the most challenging aspects of long term CPPS. It is not easy to find coping strategies because I think it is only a matter of time when, during a bad flare-up, you are overwhelmed by feelings of guilt, helplessness and hopelessness. I get the feeling that you cannot...
by European
Tue Jan 27, 2015 5:36 pm
Forum: General Discussion
Topic: New member - My case
Replies: 9
Views: 453

Re: New member - My case

I can somehow relate to your problems, struggling almost 5 years with pelvic pain, mainly in front side, shaft of the penis, base of the penis, perineum. My problems also appeared after vigorous sex/masturbation with heavy clenching of pelvic floor. Pain started as post-ejaculatory pain, but never i...