Search found 320 matches

by Caedar
Sat Jul 25, 2015 9:29 pm
Forum: General Discussion
Topic: My story of the road to CPPS - MajorSky
Replies: 196
Views: 2767

Re: The tissue "itch" aspect

MajorSky1 wrote:It's become a sort of itch inside the tissue of the muscle, and just under the skin.
I've definitely had that type of itching sensation for the past six months or so, after the real pain cleared up.
by Caedar
Thu Jul 23, 2015 4:08 am
Forum: General Discussion
Topic: Diagnosed with Prostatitis 2 weeks ago
Replies: 13
Views: 398

Re: Diagnosed with Prostatitis 2 weeks ago

Seconding what webslave said. Also, I've only found it useful for deep, diffuse muscle/body aches, essentially everyday aches and pains amplified by the systemic hyperalgesia ratcheted up by the CPPS. I only take it as needed on the worst days.
by Caedar
Sun Jul 19, 2015 8:13 pm
Forum: General Discussion
Topic: Diagnosed with Prostatitis 2 weeks ago
Replies: 13
Views: 398

Re: Diagnosed with Prostatitis 2 weeks ago

I've also found Tylenol to be the best of the three.
by Caedar
Mon Jul 13, 2015 10:11 pm
Forum: General Discussion
Topic: big breakthough after six months
Replies: 97
Views: 1936

Re: big breakthough after six months

I couldn't tolerate the side effects of Elavil (amitriptyline), but there's a very similar medicine called nortriptyline that has much less obvious side effects and seems to be about as good. I've found it useful.
by Caedar
Mon Jul 13, 2015 10:09 pm
Forum: Urgency & Frequency
Topic: Why urinary pain?
Replies: 49
Views: 1397

Re: Why urinary pain?

CPPS (more broadly, UCPPS) is a syndrome: it is not an exact diagnosis, and right now it is more defined by its phenotype (UPOINT) than by its exact cause. If your primary symptoms are pain in your genitals, and they don't appear to have a gross anatomical or infectious cause, then it's likely CPPS.
by Caedar
Mon Jul 13, 2015 7:10 pm
Forum: General Discussion
Topic: big breakthough after six months
Replies: 97
Views: 1936

Re: big breakthough after six months

Where do you see that you'd need to discontinue QUrol? As far as I know, they don't have negative interactions.
by Caedar
Sun Jul 12, 2015 8:15 pm
Forum: Mental Health Problems
Topic: Anxiety discussion
Replies: 10
Views: 737

Re: Anxiety discussion

Are you seeing a therapist? Have you tried cognitive behavioral therapy or mindfulness meditation?
by Caedar
Sat Jul 11, 2015 10:24 pm
Forum: General Discussion
Topic: Experience of a UK newbie
Replies: 13
Views: 229

Re: Experience of a UK newbie

Good to hear from you, Major. I would like to talk to you by phone if possible ... my number is 978 697 2070. caeder -- Is there a brand of magnesium you recommend? Also what about dosage? I use this: http://www.amazon.com/Foods-Magnesium-Citrate-Powder-Ounces/dp/B004189JCW/ Mostly because it's soo...
by Caedar
Sat Jul 11, 2015 9:32 pm
Forum: General Discussion
Topic: Experience of a UK newbie
Replies: 13
Views: 229

Re: Experience of a UK newbie

Well, almost any chronic pain is going to have some element of central (brain + spinal cord) component. Whether that's just heightened anxiety and depression about the condition, increasing the sensation and perception of pain, or biochemical changes that more permanently (but still reversibly!) "in...
by Caedar
Sat Jul 11, 2015 9:02 pm
Forum: General Discussion
Topic: Experience of a UK newbie
Replies: 13
Views: 229

Re: Experience of a UK newbie

Webslave -- why would it be that I have no urinary symptoms -- only perineal pain ? Is there a physiological reason for that in the pelvic floor? I also have not penis pain. Occasionally the perineal pain will radiate into the scrotum on extended sitting ... Pain symptoms elsewhere in the pelvic fl...
by Caedar
Wed Jul 08, 2015 1:16 am
Forum: General Discussion
Topic: The story so far (caedar's case)
Replies: 84
Views: 3047

Re: The story so far (caedar's case)

A short update. Ischio seems to be in a good place now. Rarely gives me problems, but it's almost normal. Rectal pain isn't a problem 90% of the time now that I've adjusted my exercise to avoid as much running. The only really annoying thing left, besides systemic fibromyalgia-like symptoms, is a fa...
by Caedar
Wed Jul 08, 2015 12:52 am
Forum: Muscle Spasm & Anxiety Tx
Topic: Intense lower abdomen spasm
Replies: 15
Views: 958

Re: Intense lower abdomen spasm

If you want somebody who truly knows their stuff, talk to Liz at Pelvic Health & Rehab in Waltham, MA. http://www.pelvicpainrehab.com/

And yes, just use a surgical glove and lube.
by Caedar
Tue Jul 07, 2015 4:08 am
Forum: Muscle Spasm & Anxiety Tx
Topic: Intense lower abdomen spasm
Replies: 15
Views: 958

Re: Intense lower abdomen spasm

Only internally, as far as I know. It's pretty easy, though. Lie on one side, insert pointer or middle finger in from back side, finger joint hooked toward your tailbone. Rotate to 8:00 PM (lying on right side) or 4:00 PM (lying on left side) position, and press.
by Caedar
Tue Jul 07, 2015 3:13 am
Forum: Muscle Spasm & Anxiety Tx
Topic: Intense lower abdomen spasm
Replies: 15
Views: 958

Re: Intense lower abdomen spasm

Check out the pubococcygeus. That's the trigger for me.
by Caedar
Mon Jul 06, 2015 11:21 pm
Forum: General Discussion
Topic: My story of the road to CPPS - MajorSky
Replies: 196
Views: 2767

Re: My story of the road to CPPS - MajorSky

It's likely there's some cross-sensitization going on between the nerves in your bowels and in your bladder/genitals. When I get diarrhea, that flares my genital pain. You might have a similar issue. Work to calm your gut down, and that might reduce your pain.