Search found 66 matches

by jcacciat
Thu Jan 02, 2014 12:19 am
Forum: General Discussion
Topic: NY Times article
Replies: 1
Views: 202

NY Times article

Mates, Here is an article from the NY Times about the W/A Protocol. This information is finally going mainstream, and the urologists are embarrassed. http://www.nytimes.com/2013/12/31/health/a-fix-for-stress-related-pelvic-pain.html?_r=1& http://www.nytimes.com/2013/12/31/health/a-fix-for-stress-rel...
by jcacciat
Thu Dec 12, 2013 2:49 am
Forum: General Discussion
Topic: New Member - My Story (redondo21)
Replies: 21
Views: 626

Re: New Member - My Story (redondo21)

Redondo21, it sounds to me like the puborectalis portion of your levator ani is hypertonic. The puborectalis lies on both sides of the prostate, at the 11:00 and 1:00 positions on the pelvic clock. Your urologist is releasing trigger points or hypertonicity when he does the prostate exam, and that i...
by jcacciat
Sun Dec 01, 2013 12:31 am
Forum: General Discussion
Topic: Perineal muscles
Replies: 4
Views: 235

Re: Perineal muscles

The tip of penis pain sounds like the result of trigger points in the levator ani. I had some of that pain early, but it quickly subsided with some internal work. I would also guess that if you find a way to release the abdominal trigger points, your pain will reduce. My abdominal trigger points ref...
by jcacciat
Sat Nov 30, 2013 11:13 pm
Forum: General Discussion
Topic: Perineal muscles
Replies: 4
Views: 235

Re: Perineal muscles

Wolfcub, thank you for taking the time to reply. I am sure many members will find that information useful, including myself. I sent an email to Tim Sawyer in Santa Rosa, and he thinks I may be accessing the only part of the levator ani that can be accessed externally. I have had a lot of success rel...
by jcacciat
Mon Nov 25, 2013 10:09 pm
Forum: General Discussion
Topic: Perineal muscles
Replies: 4
Views: 235

Perineal muscles

Mates, When I press down into the anterior portion of the perineum, I feel a bone, which I assume is the pubic bone (?). If I hook a finger down and underneath that bone, I find trigger points. This area contributes to post-urination pain. I am trying to figure out where I am, and if it is it safe t...
by jcacciat
Thu Aug 08, 2013 8:35 pm
Forum: General Discussion
Topic: The story so far (caedar's case)
Replies: 84
Views: 3696

Re: The story so far (caedar's case)

Mine are more points than bands. I have two discrete points that reproduce pain. The rest of the muscle can get sore, but everything emanates from those two places. I press in and then stroke in an anterior direction, or what I like to refer to as "north." Very light compared to the pressure I exert...
by jcacciat
Wed Aug 07, 2013 5:34 pm
Forum: General Discussion
Topic: Suffering Alone
Replies: 20
Views: 746

Re: Suffering Alone

Walla71, what areas did Freedman help you with? Was it internal, external, or both, and what muscles in particular did she treat? Did she give you an effective home program? And how far apart were the appointments? I am thinking about flying into NYC to see her and am trying to gather some intellige...
by jcacciat
Wed Aug 07, 2013 5:24 pm
Forum: General Discussion
Topic: The story so far (caedar's case)
Replies: 84
Views: 3696

Re: The story so far (caedar's case)

Caedar, I have found that the most effective technique is to perform the treatment while in a steam room, or by heating the area both before and after with moist heat. I gently palpate the muscle starting at the bottom and working my way up. As I encounter tender or painful areas, I perform a very l...
by jcacciat
Fri Aug 02, 2013 2:50 pm
Forum: General Discussion
Topic: The story so far (caedar's case)
Replies: 84
Views: 3696

Re: The story so far (caedar's case)

Based on the sources of your pain described in your original post, I would guess that you have trigger points in the adductors and the bulbospongiosus or possibly ischiocavernosus. A good trigger point massage therapist can help with the adductors. The bulbo is a challenge, and I have trigger points...
by jcacciat
Fri Aug 02, 2013 3:19 am
Forum: Clinics, Therapists & Doctors
Topic: Canadian therapist
Replies: 0
Views: 460

Canadian therapist

Has anyone heard of, or been treated by, a massage therapist in Cornwall, Ontario named Glenn Cameron? He treats CPPS with shock wave therapy and makes this claim on his website: "He is the only therapist in North America to successfully treat a major debilitating condition called chronic pelvic pai...
by jcacciat
Wed May 01, 2013 7:15 pm
Forum: General Discussion
Topic: Is anyone having success with Prosta-Q or Q-Urol ?
Replies: 34
Views: 809

Re: Is anyone having success with Prosta-Q or Q-Urol ?

I think that is obvious. I simply think that many men with CPPS do not have any significant inflammation of the prostate, bladder, or urethra. These men have referred pain from myofascial trigger points and/or a chronically contracted pelvic floor. I would not expect a substance that reduces inflamm...
by jcacciat
Wed May 01, 2013 2:36 am
Forum: General Discussion
Topic: Is anyone having success with Prosta-Q or Q-Urol ?
Replies: 34
Views: 809

Re: Is anyone having success with Prosta-Q or Q-Urol ?

No, really, that is simple enough even for a simpleton like me:> Thanks. I don't think I could possibly read the other materially slowly or carefully enough, but I appreciate the instruction. Perhaps the answer to the question is that those who do not respond to quercetin do not have any significant...
by jcacciat
Tue Apr 30, 2013 10:37 pm
Forum: General Discussion
Topic: Is anyone having success with Prosta-Q or Q-Urol ?
Replies: 34
Views: 809

Re: Is anyone having success with Prosta-Q or Q-Urol ?

More to the point, I do not understand the relationship of "prostatitis" to CPPS. My understanding has been that "prostatitis" is a misnomer, and is a word that is used by urologists to misdiagnose us. That was the case with me. A prostatitis diagnosis had me chasing my tail and taking Prosta-Q and ...
by jcacciat
Tue Apr 30, 2013 10:23 pm
Forum: General Discussion
Topic: Is anyone having success with Prosta-Q or Q-Urol ?
Replies: 34
Views: 809

Re: Is anyone having success with Prosta-Q or Q-Urol ?

Webslave, thanks for responding, but could you translate the inflammation stuff into plain English? Most of us aren't as smart as you. This makes no sense to me. Thanks.
by jcacciat
Tue Apr 30, 2013 5:12 pm
Forum: General Discussion
Topic: Is anyone having success with Prosta-Q or Q-Urol ?
Replies: 34
Views: 809

Re: Is anyone having success with Prosta-Q or Q-Urol ?

I took Prosta Q for 12 weeks and it did nothing for me. I am a little puzzled by Farr's comment because very few men with CPPS have anything wrong with the prostate. We do not have "prostatitis." We have a myofascial pain condition. I am also a little suspicious of the study demonstrating the effect...