Search found 100 matches

by guy97
Fri Feb 03, 2012 8:13 am
Forum: Clinics, Therapists & Doctors
Topic: Pelvic Floor Botox in/near Chicago/Midwest
Replies: 4
Views: 586

Re: Pelvic Floor Botox in/near Chicago/Midwest

All of my exercise is cardiovascular, and that has only started in the last two weeks because I had gained 15 lbs since first getting this. (I've lost 10 of them already. A simple plebeian diet and daily cardio do wonders. If only all things were so easy to fix!) I'm working through the director of ...
by guy97
Thu Jan 26, 2012 9:09 am
Forum: Clinics, Therapists & Doctors
Topic: Pelvic Floor Botox in/near Chicago/Midwest
Replies: 4
Views: 586

Pelvic Floor Botox in/near Chicago/Midwest

Hey everyone, I'm at a point at which I'm starting to seriously considering trying a Botox injection. Given that my trouble-spot has been identified as knotted and painful, and resisted a lot of physical therapy, I want to have a go at chemically making it relax. Dr. Dugan and I agree that this migh...
by guy97
Tue Dec 20, 2011 7:28 am
Forum: General Discussion
Topic: Kevkos - Here's my Story
Replies: 191
Views: 4353

Re: New here- Here's my Story

Kev, I DEFINITELY want to hear your report from your Sawyer visit. Given the slight similarities between our versions of CPPS, it's of great interest to me.
by guy97
Tue Dec 20, 2011 7:25 am
Forum: General Discussion
Topic: 90% Better but have a few questions
Replies: 9
Views: 391

Re: 90% Better but have a few questions

What's the logic behind the food thing? I eat a relatively balanced diet, but it doesn't follow any particular code. I feel like I would have a lot of trouble adopting gluten-free, but if it really helps, I'm willing to do anything. I don't notice any pattern of pain for specific foods. I did get tr...
by guy97
Tue Dec 20, 2011 7:20 am
Forum: Research News & Updates
Topic: Safety & effectiveness of WAND for UCPPS
Replies: 3
Views: 230

Re: Safety & effectiveness of WAND for UCPPS

This wand -needs- to be available commercially. The various sex toys that I've been given by various doctors are all either designed for vaginal use or for prostate stimulation. None of them effectively treat my levator ani trigger point.
by guy97
Tue Dec 20, 2011 7:10 am
Forum: General Discussion
Topic: New member here, just trying something new...
Replies: 70
Views: 1561

Re: New member here, just trying something new...

Yeah, I have none of the symptoms of IBS except an occasional bout of flatulence and rectal fullness; the former is a known side effect of Elavil and the latter is a common CPPS symptom... ? It's a trigger point that needs to be treated, but a long period of seeing a PT did not treat it. Weirdly, wh...
by guy97
Tue Dec 20, 2011 4:39 am
Forum: General Discussion
Topic: New member here, just trying something new...
Replies: 70
Views: 1561

Re: New member here, just trying something new...

IBS? But I have no abdominal pain or cramping and no difficulty releasing bowel movements. My pain is urinary, never in defecation. All I have are the occasional bouts of gas, typically in the late evenings. I don't doubt that nerve crosstalk is the issue here, but what's to do about it? This suppos...
by guy97
Mon Dec 19, 2011 7:42 am
Forum: General Discussion
Topic: New member here, just trying something new...
Replies: 70
Views: 1561

Re: New member here, just trying something new...

Alright, I have a new question: I've noticed that at the times when I get bouts of excessive rectal gas, occasionally a flatus will trigger a fierce spasm of penile pain. (I can tell in advance if it will, but I can't describe how I know... it's just a different sensation.) Other times, the flatus d...
by guy97
Sun Dec 11, 2011 11:35 pm
Forum: General Discussion
Topic: Kevkos - Here's my Story
Replies: 191
Views: 4353

Re: New here- Here's my Story

I am, however, taking Neue's advice with regard to ejaculation of any sort. Once per week max (I'm 24, I don't honestly think I could handle any less, especially given my admittedly hedonistic pre-CPPS lifestyle).

We'll see how that, combined with whatever other treatments I'm getting, works out...
by guy97
Sun Dec 11, 2011 11:32 pm
Forum: Nerve Tx
Topic: Botox Bad? -- Migration to brain stem
Replies: 4
Views: 574

Re: Botox Bad? -- Migration to brain stem

Thanks for all the advice and warnings. If I do decide to go this route, it will be after a LOT of caution and preparation.

In my case, it would be a direct trigger-point injection (anterior levator ani). But my doc has a lot of other things she wants to try first.
by guy97
Fri Dec 09, 2011 4:04 am
Forum: Surgery, Injections, WIT, TURP, TUIP etc
Topic: Botox Thoughts?
Replies: 17
Views: 1002

Re: Botox Thoughts?

It seems largely appropriate for me since I have only a single trigger point (two separate therapists have been able to press my entire pelvic floor without pain except for one large anterior-levator-ani spot.) A lidocaine injection to that spot brought me to feeling 80% better for a couple of hours...
by guy97
Thu Dec 08, 2011 7:33 pm
Forum: Surgery, Injections, WIT, TURP, TUIP etc
Topic: Botox Thoughts?
Replies: 17
Views: 1002

Re: Botox Thoughts?

I'm at a point at which I'm considering a Botox injection. My doctor is looking into who at Rush University Medical Center (highly reputable) does the best Botox shots, and I'm going to have my physical therapist relay to them the exact spot I need it done at. Webslave, all, would you still recommen...
by guy97
Thu Dec 08, 2011 7:26 pm
Forum: Alpha Blockers
Topic: Terazosin (hytrin) Week 2 Results
Replies: 6
Views: 707

Re: Terazosin (hytrin) Week 2 Results

I've tried so many pills, including Uroxatral, but I didn't have any results with Uroxatral in three weeks so I stopped it. I regret doing that now. I'm going to ask my physician to let me try a high dose of Terazosin. I'm generally immune to any side effects (the only ones that I've had are dry mou...
by guy97
Thu Dec 08, 2011 7:26 am
Forum: General Discussion
Topic: Kevkos - Here's my Story
Replies: 191
Views: 4353

Re: New here- Here's my Story

Me too, Kev, and I'm 24. I'm looking at nearly two-thirds of my life with this if I can't fix it somehow, and I have a lot of trouble having any interest in dating as well. I'm curious what your regimen is? For my own part, I'm going to try going cold-turkey on masturbation/ejaculation for several w...
by guy97
Mon Dec 05, 2011 11:48 pm
Forum: General Discussion
Topic: Can over-masturbation cause CPPS? (Ockerdoc Case)
Replies: 32
Views: 1315

Re: Excessive gas

Good to know my body is trying to right itself. In the meantime, I'm buying more air freshener. <.<