Search found 125 matches

by kevkos
Thu Jun 07, 2012 3:20 am
Forum: General Discussion
Topic: Kevkos - Here's my Story
Replies: 170
Views: 3514

Re: New here- Here's my Story

WTH- tried the crystal wand but no success. For now it's my fingers, sometimes I feel relief, other times no changes. Thanks for the tips on running/meditation. I've tried that a couple times since I read your post and I like it. Do you mind helping me with a couple of referrals? I'm looking for a g...
by kevkos
Sun May 27, 2012 6:58 am
Forum: General Discussion
Topic: Kevkos - Here's my Story
Replies: 170
Views: 3514

Re: New here- Here's my Story

Thanks guys, apparently, they changed the rules and you must at all costs get a prescription from your doctor in order to get an appt with her. Not only that, but she has cut way down on new patients so there's like a waiting list for her...they were going to have me see another PT there (can't reme...
by kevkos
Fri May 25, 2012 10:03 pm
Forum: General Discussion
Topic: Kevkos - Here's my Story
Replies: 170
Views: 3514

Re: New here- Here's my Story

Ugh, flare city lately and I was going to see Chrissie, but apparently they need a prescription from "my doctor". I don't have a regular doctor and my urologist wanted to take this whole thing a different direction that I didn't like, so not sure where to get a referral from. Interesting because Tim...
by kevkos
Mon May 14, 2012 10:30 pm
Forum: General Discussion
Topic: Kevkos - Here's my Story
Replies: 170
Views: 3514

Re: New here- Here's my Story

Thanks We.the.hulk. It's been an up and down road the past month. I'm back from my SE Asia trip as of yesterday, and for some reason, jetlag causes a big flare for me. I don't even think it's from sitting on the airplane, but something about throwing off my sleep schedule usually gets me. I think I ...
by kevkos
Mon Apr 16, 2012 3:53 am
Forum: General Discussion
Topic: Kevkos - Here's my Story
Replies: 170
Views: 3514

frequent urination

Ok, this hasn't been a HUGE problem for me with my CPPS, sometimes I have to pee a lot and other times I'm like I used to be and can go many hours without peeing. But, the last 5 days or so I have been going like every 20 minutes. I don't know what has brought this on. I also have a cold right now s...
by kevkos
Mon Apr 16, 2012 3:49 am
Forum: General Discussion
Topic: Kevkos - Here's my Story
Replies: 170
Views: 3514

Re: New here- Here's my Story

Latte, this is great info, thanks! I definitely I'm guilty of going 100mph (stressing about stuff than never happens mostly), so even 2 days after a Tim Sawyer session I can feel everything coming back. I guess my thing will be to get a hold of the tapes (or mp3s) somehow, or, just sign up for the c...
by kevkos
Thu Apr 05, 2012 3:10 pm
Forum: General Discussion
Topic: Kevkos - Here's my Story
Replies: 170
Views: 3514

Re: New here- Here's my Story

I read all 7 pages of this thread and it reads like my life story with CPPS. I went to Dr. Zeitlin in 2002, Dr. Parsons in 2003, Dr. Wise's seminar in 2004. My advise with my experience goes like this. All the tests they did showed nothing except the cystoscopy done by Dr. Zeitlin which showed seve...
by kevkos
Wed Apr 04, 2012 5:10 am
Forum: General Discussion
Topic: Kevkos - Here's my Story
Replies: 170
Views: 3514

Re: New here- Here's my Story

Quick note: I'm in week 4 of my trip, I have a few more days in Bali then off to Singapore, Malaysia, and Thailand for another month. I was doing pretty good CPPS-wise for a while then had a HUGE flare up a few days ago, pretty frustrating as I had started the stretching and even a little swimming a...
by kevkos
Fri Mar 23, 2012 3:00 am
Forum: General Discussion
Topic: Kevkos - Here's my Story
Replies: 170
Views: 3514

Re: New here- Here's my Story

Ok I'm back. Like Yoink, I wish I could say I took a hiatus from the board because I was on the fast track to recovery. Not so! Here's an update: I'm currently traveling in SE Asia, right now in Bali, Indonesia. I planned this trip in January 2011, and at that point I thought I would EASILY be over ...
by kevkos
Thu Feb 23, 2012 4:40 pm
Forum: General Discussion
Topic: Kevkos - Here's my Story
Replies: 170
Views: 3514

Re: New here- Here's my Story

We the hulk, Thanks so much for your awesome response. This helps tremendously. It's definitely turning me off to going through with this procedure. What I find hard is to tell doctors what you want and have them comply. Do you have any recommendations on Dr's in the SD area? I could maybe try Parso...
by kevkos
Wed Feb 22, 2012 3:47 am
Forum: General Discussion
Topic: Kevkos - Here's my Story
Replies: 170
Views: 3514

Re: New here- Here's my Story

Thanks, WS! Good idea about another uro. It's very strange. The comment I made about cystoscopy, I put a "Wise-Anderson Protocol?" in parenthesis, and it somehow got replaced with "Wise-Anderson protocol." I didn't type that, must be some kind of autocorrect feature! It did it again! I guess you ca...
by kevkos
Wed Feb 22, 2012 3:46 am
Forum: General Discussion
Topic: Kevkos - Here's my Story
Replies: 170
Views: 3514

Re: New here- Here's my Story

Thanks, WS! Good idea about another uro.

It's very strange. The comment I made about cystoscopy, I put a "sp?" in parenthesis, and it somehow got replaced with "Wise-Anderson protocol." I didn't type that, must be some kind of autocorrect feature!
by kevkos
Tue Feb 21, 2012 5:52 pm
Forum: General Discussion
Topic: Kevkos - Here's my Story
Replies: 170
Views: 3514

Re: New here- Here's my Story

Not sure if anyone's reading this besides webslave, but I'll keep updating. I went to the urologist and asked about the rescue instillation. He wants to do a cystoscopy (sp?) and expand my bladder as some sort of test. He said this alone can sometimes help with the symptoms, but it will help him det...
by kevkos
Tue Feb 14, 2012 6:25 am
Forum: General Discussion
Topic: Kevkos - Here's my Story
Replies: 170
Views: 3514

Re: New here- Here's my Story

Update time! Tomorrow I'm going to the uro and will be asking about webslaves suggestion of the rescue instillation. I'll be curious if this guy knows about it and can help at all, otherwise, it's just another wasted $40 copay and whatever else they decide to charge me for! Anyway, I have good news!...
by kevkos
Sun Feb 05, 2012 11:28 pm
Forum: General Discussion
Topic: CONFERENCE CALL - SUPPORT GROUP IDEA
Replies: 6
Views: 302

Re: CONFERENCE CALL - SUPPORT GROUP IDEA

I'm in. Skype or freeconferencecall.com could be options.