Search found 47 matches

by jVan
Tue Mar 16, 2010 9:32 pm
Forum: Surgery, Injections, WIT, TURP, TUIP etc
Topic: Ganglion Impar Nerve Block
Replies: 13
Views: 748

Re: Ganglion Impar Nerve Block

That'd be good, but RF can often last years. Safer than chemical neurolysis too, that why I'm doing it that way. You didn't answer my question about the pudendal and incontinence though. I've do a thorough academic search of the literature and have found almost nothing about nuerolysis of the pudend...
by jVan
Mon Mar 15, 2010 6:38 pm
Forum: Surgery, Injections, WIT, TURP, TUIP etc
Topic: Ganglion Impar Nerve Block
Replies: 13
Views: 748

Re: Ganglion Impar Nerve Block

Hi there, I'm afraid I don't know enough about the other procedures to offer an opinion. I know you can't do chemical neurolysis or ablation on any part of the pudendal, as it will render you incontinent, but the ganglion impar seems much more open to procedures. Where did you hear this about the p...
by jVan
Tue Feb 16, 2010 3:38 pm
Forum: Surgery, Injections, WIT, TURP, TUIP etc
Topic: Ganglion Impar Nerve Block
Replies: 13
Views: 748

Re: Ganglion Impar Nerve Block

Got the steriod block last thursday. The doctor is suggesting the possibility of doing chemical neurolysis as a more lasting solution, but I don't like the odds of developing neuritis (~10%), especially given my age (29) and the fact that this is usually reserved for terminal patients because of the...
by jVan
Fri Feb 05, 2010 3:57 am
Forum: Other treatments
Topic: Ibogaine???
Replies: 4
Views: 200

Re: Ibogaine???

An excellent argument for large dosage! :)

But seriously, adverse effects are always a risk. However, the article did not say what health condition those people were in. Likely had pre-existing CV issues.
by jVan
Sat Jan 16, 2010 6:25 pm
Forum: Surgery, Injections, WIT, TURP, TUIP etc
Topic: Ganglion Impar Nerve Block
Replies: 13
Views: 748

Re: Ganglion Impar Nerve Block

Thanks Jay,

As it happens, my Dr. (Dr. Sassano) was also head of pain management here at Shands in Gainesville, so I think I'm in good hands. He claims to have done thousands of these procedures. They probably know each other, and if not, should talk and compare techniques and results.
by jVan
Thu Jan 14, 2010 11:28 pm
Forum: Surgery, Injections, WIT, TURP, TUIP etc
Topic: Ganglion Impar Nerve Block
Replies: 13
Views: 748

Re: Ganglion Impar Nerve Block

Good luck to you Jay. Speaking financially, what is your difficulty? Do you not have insurance, or will the insurance not cover the procedure? I am hoping that if pain relief is significant enough, therapy will not be necessary anymore and the muscles will eventually relax becuause the motor neurons...
by jVan
Thu Jan 14, 2010 7:16 pm
Forum: Surgery, Injections, WIT, TURP, TUIP etc
Topic: Ganglion Impar Nerve Block
Replies: 13
Views: 748

Ganglion Impar Nerve Block

Hi all, I'm probably going in for one of these in two weeks and am fishing for any personal experiences or advice people may be able to offer. Please share any stories, warnings, experiences, or complications that you may have experienced. I've found that doctors rarely do a good job explaining all ...
by jVan
Tue Dec 15, 2009 1:06 am
Forum: Nerve Tx
Topic: D-Cycloserine ???
Replies: 1
Views: 503

D-Cycloserine ???

I'm curious if anyone has tried this. I am probably going to ask my Dr. for some next month. Very interesting article attached. d-Cycloserine reduces neuropathic pain behavior through limbic NMDA-mediated circuitry Magali Millecampsa, Maria V. Centenoa, Hector H. Berraa, Charles N. Rudicka, Simona L...
by jVan
Fri Nov 06, 2009 3:46 am
Forum: Other treatments
Topic: Ibogaine???
Replies: 4
Views: 200

Ibogaine???

Here is a far out idea for CPPS sufferers Ibogaine http://en.wikipedia.org/wiki/Ibogaine See the part on pain management. Also may be effective in behavior modification and breaking harmful, obsessive thought patterns (something I know I could benefit from). What if we suddenly stopped responding to...
by jVan
Wed Nov 04, 2009 3:35 am
Forum: Research News & Updates
Topic: NIH BIOMARKER/GENETIC STUDY
Replies: 9
Views: 502

Re: NIH BIOMARKER/GENETIC STUDY

How about a focused CPPS genetic study. There are plenty of volunteers here I'm sure. Any researchers who have even a small grant could do a very interesting phenotype vs protein (satellite microarray) study to get the ball rolling for a targeted genetic exploration. I wouldn't be surprised in the l...
by jVan
Wed Nov 04, 2009 3:13 am
Forum: Pain Management Tx
Topic: Opiates, bad rap?
Replies: 12
Views: 555

Re: Opiates, bad rap?

Hi Jay, Aside from Botox, nerve blocks, and surgery (not an option), I have tried everything. Thankfully, my case is marginal so I can function in the world to a moderate degree, provided that I take meds, do Trigger Point therapy, and relax. I'm just totally fed up with being constantly uncomfortab...
by jVan
Tue Nov 03, 2009 7:46 pm
Forum: Pain Management Tx
Topic: Opiates, bad rap?
Replies: 12
Views: 555

Re: Opiates, bad rap?

I live in Gainesville. Anyone near hear you might recommend? Specifically for pain management right now, I need an understanding Doctor and am having trouble getting past the anti-opiate mentality. Also, I think these people actually think I could be trying to score drugs or faking; as if! Thanks, a...
by jVan
Tue Oct 27, 2009 6:53 pm
Forum: Pain Management Tx
Topic: Opiates, bad rap?
Replies: 12
Views: 555

Re: Opiates, bad rap?

Jay,
I just noticed your in Florida...So am I, just moved. Any good urologists or pain management Doctors or therapists around that you can recommend?

Thanks again.
by jVan
Tue Oct 27, 2009 6:50 pm
Forum: Pain Management Tx
Topic: Opiates, bad rap?
Replies: 12
Views: 555

Re: Opiates, bad rap?

Has the lessening of your pain improved the condition? (i.e. less flare ups, normal lifestyle)

Thanks.

Btw, this question goes out to anyone undergoing pain management.
by jVan
Mon Oct 26, 2009 11:35 pm
Forum: Pain Management Tx
Topic: Opiates, bad rap?
Replies: 12
Views: 555

Re: Opiates, bad rap?

Agreed. But the literature suggests less addictive potential with the longer acting, on-a-day meds., despite the relative strength. What's important is to take as prescribed. The addictive potential is unbelievable if pill are crushed and/or snorted. If there are any long-lasting, less strong narcot...