Search found 202 matches

by gmccormack
Wed Sep 08, 2010 3:55 am
Forum: Pain Management Tx
Topic: Tanezumab
Replies: 3
Views: 530

Re: Tanezumab

I find that result hard to believe since expected time of any relief is 2 weeks after initial dose. Could it have been placebo or you wanted it to work so bad you convinced yourself it did? I can not say for sure I was helped or not, my pain has decreased since I had taken it but I have been off now...
by gmccormack
Wed Sep 08, 2010 3:43 am
Forum: Research News & Updates
Topic: IC/PBS and IBS, Fibromyalgia, CFS
Replies: 2
Views: 163

Re: IC/PBS and IBS, Fibromyalgia, CFS

Glad you disagree, the conclusion is quite disturbing and dire.... there may be progression over time from an organ centric to a regional and finally to a systemic pain syndrome with progression of symptom severity, and deterioration of cognitive and psychosocial parameters I find the opposite to be...
by gmccormack
Wed Aug 25, 2010 3:17 am
Forum: General Discussion
Topic: chronic fatigue syndrome (CFS) - retro virus
Replies: 13
Views: 447

chronic fatigue syndrome (CFS) - retro virus

I saw this in the WSJ today and upon further research the CFS world is very into this. We all know that some sort of fatigue is sometimes accompanied with CPPS, however, I do not know if it is technically CFS. Incidentally, there is a link between prostate cancer and a retro virus. New Hope in Fatig...
by gmccormack
Mon Jul 12, 2010 8:37 pm
Forum: General Discussion
Topic: Etanercept - anti TNF
Replies: 1
Views: 145

Etanercept - anti TNF

AKA and better known as Enbrel. Has anyone ever tried it for CPPS? Without going into a lot of biological details http://en.wikipedia.org/wiki/Etanercept Dr. Alexander did a study on it in 2001 but it was discontinued and I can't find any results on it. I tried contacting him but he didn't respond. ...
by gmccormack
Thu Jul 08, 2010 4:18 am
Forum: Research News & Updates
Topic: Bacteria and female bladder CPPS
Replies: 7
Views: 238

Re: Bacteria and female bladder CPPS

Do you think the relaxation is actually decreasing the symptoms or because you are resting with the pain, it becomes more bearable psychologically?
by gmccormack
Wed Jul 07, 2010 4:13 am
Forum: Research News & Updates
Topic: Bacteria and female bladder CPPS
Replies: 7
Views: 238

Re: Bacteria and female bladder CPPS

Thanks Sherradin, I wanted to know if anyone had seen JC Nickel especially if the member has seen him more than once, and I know there have been some Shoskes patients on this forum, did he offer anything that the usual good uro would not offer. Are you saying that you tried their theories/studies? O...
by gmccormack
Mon Jul 05, 2010 2:32 am
Forum: Research News & Updates
Topic: Bacteria and female bladder CPPS
Replies: 7
Views: 238

Re: Bacteria and female bladder CPPS

I see once again Nickel is on this study, I know from reading some of his work he is officially perplexed and just does study after study. Do you think now that he will now accept the non infection theory for most men? I almost want to make the trip up to see him in Canada I would gladly pay out of ...
by gmccormack
Thu Jul 01, 2010 1:35 am
Forum: Research News & Updates
Topic: Gene therapy for chronic neuropathic pain
Replies: 0
Views: 138

Gene therapy for chronic neuropathic pain

I understand this is not a chronic pain forum but more specifically a CPPS forum, but I found this article in Anasthesiology News July issue interesting and pertinent since it focuses on potential new "transciption" treatments for neuropathic pain, pain that is almost certainly invloved in CPPS. Wid...
by gmccormack
Mon Jun 28, 2010 6:24 pm
Forum: General Discussion
Topic: Posture and Exercise
Replies: 8
Views: 410

Re: Posture and Exercise

In terms of the exercise, I started exercising (light weights, walking - very minimal pelvic work) has reduced my symptoms. I was an avid gym rat prior to CPPS, then I stopped because I thought it made the symptoms worse, while that is true for some exercises I have found some that don't flare me up...
by gmccormack
Wed Jun 09, 2010 2:50 am
Forum: General Discussion
Topic: Hello everyone, it's strobers
Replies: 3
Views: 297

Re: Hello everyone, it's strobers

I do not mean to interupt this post about Peyronie's disease, I think it's great Strobers may have found a forum that could help him through this. I just want to point out this is exactly the situation I have posted about before, I think there are quite possibly many men that suffer from compounding...
by gmccormack
Sun Jun 06, 2010 1:36 am
Forum: General Discussion
Topic: NEWBIE (rs81)
Replies: 90
Views: 1356

Re: NEWBIE (rs81)

Mikey,

Let us know what Alexander says, what the protocol he uses these days. You are right he is a well knows CPPS urologist, he has done many studies.
by gmccormack
Thu Jun 03, 2010 1:41 am
Forum: Research News & Updates
Topic: AUA 2010 - Wise-Anderson Protocol
Replies: 6
Views: 319

Re: AUA 2010 - Wise-Anderson Protocol

Well I am disappointed too, although, I do agree with the reasons Webslave puts forth. The truth is out of the 16 patients at my session, by no means enough to substantiate a scientific claim these numbers match up. About half are improved and those that are improved including myself are not 100% an...
by gmccormack
Wed Jun 02, 2010 2:29 am
Forum: Research News & Updates
Topic: Myofascial Pain Syndrome "enormously complex"
Replies: 3
Views: 267

Re: Myofascial Pain Syndrome "enormously complex"

This is actually an incredibly interesting piece. Take a look at the paper on this page called: 2008 - Uncovering The Biochemical Milieu Of Myofascial Trigger Points Using In Vivo Microdialysis I like it because it attempts to explain some of the unknowns of this condition (nervous system malfunctio...
by gmccormack
Fri May 28, 2010 3:53 pm
Forum: General Discussion
Topic: New Member
Replies: 2
Views: 176

Re: New Member

While Dr. Nickel aka "Mr Prostatitis" is a big researcher, I'm not so sure if you saw him he would do anything different than what other good CPPS uro's like Moldwin or Shoskes do.
by gmccormack
Wed May 26, 2010 8:39 pm
Forum: General Discussion
Topic: new member, old suffererer
Replies: 10
Views: 307

Re: new member, old suffererer

Jay you didn't build up a tolerance to the Klonopin yet?

I get great relief from it like billy, but am always afraid to take it because of fear that it won't have the same effect the next time.