Search found 77 matches

by extreme3
Tue Mar 16, 2010 5:47 pm
Forum: General Discussion
Topic: Physical Therapy
Replies: 5
Views: 226

Re: Physical Therapy

Guys: thanks much for the replies. On the upside, I can really appreciate how far I've come since the beginning. I can recall that first day of feeling like a knife had been stuck in my perineum and regular bouts of urinary issues. At my best moment since then, I've felt almost normal again. I can s...
by extreme3
Sat Mar 13, 2010 2:41 pm
Forum: General Discussion
Topic: Physical Therapy
Replies: 5
Views: 226

Physical Therapy

I've been suffering from this condition for a couple years now. I'll admit, this has not been as debilitating for me as I've heard anecdotally on this board and I have gotten a little better, but I'm just not satisfied with living sub-optimally right now. I was fortunate to find a PT in my area that...
by extreme3
Sat Mar 13, 2010 2:12 pm
Forum: General Discussion
Topic: Describe a flare?
Replies: 2
Views: 194

Re: Describe a flare?

Thanks, that's a good way to describe it from what I've heard. There are always symptoms, yet there are moments when there is an elevated instance of them. Maybe I've just been lucky enough to avoid flares by staying away from the exacerbating factors (e.g. diet) or my "flares" are so subtle, they a...
by extreme3
Fri Mar 12, 2010 11:22 pm
Forum: General Discussion
Topic: Describe a flare?
Replies: 2
Views: 194

Describe a flare?

I noticed that uros and many folks on this board describe a "flare"? From what I've heard, it's an increase in symptoms: either from a urinary or pain perspective. It's funny listening to uros try to describe a condition they don't know much about unless they are sufferers themselves (wouldn't that ...
by extreme3
Sun Feb 21, 2010 2:26 am
Forum: General Discussion
Topic: New and wondering
Replies: 7
Views: 195

Re: New and wondering

First off, welcome to the forum - you've come to the right place. Your story echoes many others I've come across here, including my own. In my opinion, the answer to your question is a resounding 'Yes'. Do whatever makes you feel better and don't become obsessive over your condition. This affliction...
by extreme3
Thu Feb 18, 2010 11:29 pm
Forum: Phytotherapy & Supplements
Topic: Cystoprotek
Replies: 10
Views: 628

Re: Cystoprotek

Just as an update - I'm not convinced I can correlate Cystoprotek to symptom relief. The pain waxes and wanes without any identifiable pattern (yes, sitting too long is definitely a guarantee for pain).
All I can say for sure is stretching and light exercise are guaranteed to bring relief.
by extreme3
Mon Feb 08, 2010 5:04 pm
Forum: General Discussion
Topic: 4 years now since my onset and hope!
Replies: 3
Views: 182

Re: 4 years now since my onset and hope!

Excellent post! I couldn't agree more with everything you've said here.

Get out there and live - manage this condition and don't let it manage you. There is too much good in life to let this thing kill your hopes and dreams.
by extreme3
Thu Feb 04, 2010 11:07 pm
Forum: Phytotherapy & Supplements
Topic: Cystoprotek
Replies: 10
Views: 628

Cystoprotek

I've had a lot of success the past week with Cystoprotek. This is a supplement designed for IC sufferers but it does contain a Quercetin component to treat inflammation. I still have mild nocturia symptoms (1-2 times per night), but the pain has subsided significantly and I can sit an entire day at ...
by extreme3
Mon Feb 01, 2010 9:32 pm
Forum: General Discussion
Topic: TP work triggers flare?
Replies: 7
Views: 349

Re: TP work triggers flare?

These are all great questions. With respect to #1, I would assume TP work is a bit traumatic for the internal nerves/muscles and would be advisable to have some recovery time in between sessions. Question is, how long?
by extreme3
Mon Feb 01, 2010 4:41 am
Forum: General Discussion
Topic: TP work triggers flare?
Replies: 7
Views: 349

TP work triggers flare?

Just wanted to share this experience with everyone and see if they could relate: I was doing some internal TP work last week and I got some flares that I haven't had in a long time. Increased frequency (like every ten minutes) and the bladder seemed hypersensitive. This seemed to occur right afterwa...
by extreme3
Mon Feb 01, 2010 4:36 am
Forum: General Discussion
Topic: My progress (Calguy's Case)
Replies: 222
Views: 4984

Re: Was doing so good!

Sorry to hear about this calguy. I can sympathize with you - just when you think you are over this thing, you get away from the things that were working and it knocks you right back down...

Get back on the horse, bring back the things that helped you and take it easy next time!
by extreme3
Fri Jan 22, 2010 3:09 pm
Forum: General Discussion
Topic: I'm NEW and could use your help, please.
Replies: 6
Views: 234

Re: I'm NEW and could use your help, please.

You've come to the right place. I share your frustration - the medical community is extremely ignorant and ill equipped to handle this condition. I would highly recommend perusing this board for a variety of treatment options. First and foremost, lifestyle changes are definitely in order. As a gener...
by extreme3
Wed Jan 20, 2010 5:09 pm
Forum: General Discussion
Topic: Internal massage seems to work
Replies: 3
Views: 242

Re: Internal massage seems to work

Sandcrab - Two years ago, my initial symptoms were rectal/perineum pain and urinary symptoms (frequency, weakness of stream, etc.). For me, I realized that certain triggers (e.g. caffeine) caused flares in the urinary department. I got a sense of what was causing them and cut out the offenders immed...
by extreme3
Sat Jan 16, 2010 6:02 am
Forum: General Discussion
Topic: Internal massage seems to work
Replies: 3
Views: 242

Internal massage seems to work

While my CPPS has improved dramatically over the past 2 years, I still have some residual pain around the rectum which is makes sitting a bit uncomfortable. My urinary symptoms are pretty much gone now. While I've read HITP, I've have never tried TP therapy before either. I recently starting trying ...
by extreme3
Mon Dec 14, 2009 6:40 pm
Forum: General Discussion
Topic: Swimming or running
Replies: 8
Views: 254

Re: Swimming or running

I've found that a regular running regimen has been vital in my recovery. While my condition is much improved, any flare ups are immediately relieved by 20 - 30 minutes of running. Also, you can't ignore the psychological benefits of regular exercise as well, so that may be another confounding variab...