Search found 105 matches

by kpbos
Tue Jun 06, 2006 11:34 pm
Forum: General Discussion
Topic: Open Focus
Replies: 2
Views: 138

Open Focus

I read through some old posts where people were going to try this technique for relaxation - http://www.openfocus.com - does anyone here use it or have tried it? Is is helpful? I am wondering how it compares to Dr. Wise's paradoxical relaxation, and if it is easier to learn. I'll probably give it a ...
by kpbos
Tue Jun 06, 2006 2:00 am
Forum: More Success Stories
Topic: A Word of Hope
Replies: 3
Views: 5736

NoMo, Congratulations on your success and encouraging words. I am also following the Stanford/Wise-Anderson Protocol (on and off for about 2.5. years) but recovery has been slow. Regarding the Katie work, how often did u practice it? As of now, I only do it weekly with a therapist but I would like t...
by kpbos
Tue Jun 06, 2006 1:53 am
Forum: Other treatments
Topic: T.E.N.S.
Replies: 31
Views: 2214

Is that the idea of TENS - that they induce the body to perform Kegels by itself? If so, that doesn't sound like a route I'd want to take, I can't get the pelvis to stop contracting.

A previous post mentions it gets the muscles to massage themselves?
by kpbos
Mon Jun 05, 2006 10:08 pm
Forum: Other treatments
Topic: T.E.N.S.
Replies: 31
Views: 2214

To those of you who have received treatment with TENS, I am curious to know how it went or how it is going? I was at the pain doctor today and she mentioned it, I remembered hearing about it from this site but couldn't remember if it was something to try or avoid. Thanks for any input.
by kpbos
Fri Jun 02, 2006 1:28 am
Forum: General Discussion
Topic: getting emotional
Replies: 3
Views: 229

getting emotional

Well I'm hoping that this is a good sign, considering that I've learned so well to bury my emotions, but lately I've been crying a lot, especially when speaking with my therapist. In fact, I continued crying for a good 10-15 minutes when my last session ended. It feels like it might be a good sign, ...
by kpbos
Fri Jun 02, 2006 1:11 am
Forum: General Discussion
Topic: Cymbalta for CPPS
Replies: 5
Views: 455

That blurb mentioned vaginal valium suppositories, are there rectal valium suppositories and are they helpful for CPPS? More helpful than taking valium orally?
by kpbos
Fri Jan 13, 2006 10:47 pm
Forum: General Discussion
Topic: ssri (paxil, celexa)
Replies: 6
Views: 222

in the past I took zoloft which was helpful for the intense anxiety that I was experiencing with CPPS. It also did delay my ejaculation and hence prolong intercourse, which was probably rough on the pelvis but was quite pleasing to women. hehe. I am currently taking paxil and while I did not like it...
by kpbos
Tue Jan 03, 2006 10:51 pm
Forum: General Discussion
Topic: frequency?
Replies: 9
Views: 321

I'd say at least once a week, if not more, I'll have a bowel movement and urinate at the same time, only to have to urinate 20-30 minutes later just like you describe. And that second urination is often a bit more uncomfortable compared to the first.
by kpbos
Mon Dec 19, 2005 12:34 am
Forum: General Discussion
Topic: cymbalta, Lyrica
Replies: 1
Views: 156

cymbalta, Lyrica

Any CPPS sufferers tried either of these new drugs yet? I looked around online, and as usual, it seems like some users liked them, some hated them, some found no change. I'm taking nuerontin and havent had any improvement with it, and just started paxil and not liking it too much. I know from previo...
by kpbos
Sun Dec 18, 2005 11:00 pm
Forum: General Discussion
Topic: Can No Longer Handle All of This1
Replies: 12
Views: 364

BG, I thank you for your post, and for being so candid. I hope it helps you to hear that your story reminded me that I'm not alone in this. Something that I find helpful (when I remember to do it) is to write down the most distressing thoughts I have about pelvic pain, and keep a tally of how many t...
by kpbos
Wed Nov 30, 2005 3:37 pm
Forum: General Discussion
Topic: I fly oversee to see PT in New York. Please reed this
Replies: 22
Views: 809

I think the advice I give is the same that most people here would give. You need to give yourself more time to heal. It is good that the internal work was intense for you, it is a sign that you really needed it. It is also good that you were able to give yourself this trip to NY, but the idea that s...
by kpbos
Tue Nov 29, 2005 2:09 am
Forum: General Discussion
Topic: high bilirubin
Replies: 5
Views: 222

high bilirubin

This may be slightly off topic, but after a recent physical with bloodwork done twice to confirm the results, the doctor mentioned that I have a high level of bilirubin, which is secreted by the liver if I'm correct. Tests for hepatitis were negative. About a week or so before the first test I start...
by kpbos
Mon Nov 21, 2005 3:03 am
Forum: General Discussion
Topic: Noni juice
Replies: 2
Views: 152

Noni juice

Has anyone heard of noni juice or perhaps given it a try? I found a few sites with testimonials describing relief in cases of fibromyalgia, chronic fatigue, and depression. Most likely not a cure-all for CPPS, but could provide some support. Any thoughts?
by kpbos
Mon Nov 14, 2005 3:57 pm
Forum: Nerve Tx
Topic: Neurontin experiences
Replies: 1
Views: 785

Neurontin experiences

About a month ago, it seemed like my condition was finally improving after getting to PT once a week and practicing relaxation about everyday. Then my symptoms came roaring back and havent let up - my theory is that it is suppressed emotions that were coming up but my mind isn't quite ready to face....
by kpbos
Mon Oct 17, 2005 10:08 pm
Forum: General Discussion
Topic: Stress Eraser
Replies: 1
Views: 172

Stress Eraser

Has anyone heard of or tried this device? http://www.stresseraser.com. Its a portable biofeedback device with a display showing you how well you are relaxing. I was thinking of buying one though it is rather expensive ($400). I am curious to know if anyone has any experience with it or any opinions.