Search found 168 matches

by Clay
Mon Mar 10, 2008 7:18 pm
Forum: General Discussion
Topic: Praise the Lord!
Replies: 8
Views: 593

Re: Praise the Lord!

Hey, if it works, I'll try it. :sad:
by Clay
Mon Mar 10, 2008 7:10 pm
Forum: Phytotherapy & Supplements
Topic: Vitamin D deficiency
Replies: 22
Views: 901

Re: Vitamin D deficiency

For what it's worth, my naturopath recommends supplementing up to 8000/day with oil based D capsules. They should be taken with even more oil for better absorption, and with my calcium and magnesium. Taking too much at night keeps some people awake. I live far enough north in a cloudy area so that e...
by Clay
Mon Mar 10, 2008 6:30 pm
Forum: General Discussion
Topic: What does Elavil do?
Replies: 14
Views: 567

Re: What does Elavil do?

My uro said that Elavil calms peripheral nerves, while my Lyrica calms more central trunk nerves. I wish I could remember the actual terms she used. The combination of Elavil and Lyrica has been a life saver for me, even with the side effects of weight gain, dry mouth and ED. I've cut the narcotics ...
by Clay
Wed Feb 20, 2008 9:07 pm
Forum: General Discussion
Topic: Neue01's Case
Replies: 145
Views: 3264

Re: Why gluten now?

I'm sure I ate gluten every day of my life for 60+ years. Then one day I got some diarrhea, and then I lost 40 pounds because it wouldn't stop. It's really hard to believe that I was accruing slow damage for 60 years. My best guess is a virus that affected my epigenome. Genetic tests confirm I have ...
by Clay
Mon Feb 18, 2008 8:39 pm
Forum: General Discussion
Topic: My progress (Calguy's Case)
Replies: 222
Views: 5245

Re: laying on my side/causes pain around bladder

Laying on my left side is about as bad as sitting. Occasionally I have pain laying on my back.
by Clay
Mon Feb 18, 2008 8:37 pm
Forum: General Discussion
Topic: Supplements to try
Replies: 19
Views: 897

Re: Supplements to try

There are posts here somewhere from a guy who had real relief from olive oil. That still intrigues me. I take docusate sodium (stool softener) and milk of magnesia as needed to avoid constipation at all costs. It can set off flares for me. I'm on a boatload of Lyrica right now, and it has helped eno...
by Clay
Sat Feb 09, 2008 5:27 am
Forum: General Discussion
Topic: My progress (Calguy's Case)
Replies: 222
Views: 5245

Re: no wheat gluten diet

William Fine is a well credentialed gastroenterologist who believes antibodies show up in the gut long before they show in the blood. He offers a online-requested stool test for gluten from enterolab.com if you are in the US. That's where I found my problem with gluten and dairy. While stopping them...
by Clay
Thu Jan 31, 2008 4:27 pm
Forum: General Discussion
Topic: Help Finding a PT
Replies: 2
Views: 193

Re: Help Finding a PT

I found help using the International Pelvic Pain Society site at pelvicpain.org. The site has a 'find provider' option.
by Clay
Wed Jan 30, 2008 3:58 pm
Forum: General Discussion
Topic: Feeling Crappy and need perspective (Elitynski's Case)
Replies: 258
Views: 9079

Re: Internal Work & Hemorrhoids

Time and Prep H. Mine was (fingers crossed) a one time event.
by Clay
Wed Jan 30, 2008 3:56 pm
Forum: General Discussion
Topic: Interesting and encouraging observation
Replies: 4
Views: 294

Re: Interesting and encouraging observation

On the same note, I recently changed insurance and went to a new Uro, one my PT recommended. The first questions out of her mouth were Do you follow the Stanford/Wise-Anderson Protocol? Do you have Headache in the Pelvis? Have you read it? It dropped my jaw. Granted, she hasn't any cures in her pock...
by Clay
Sun Jan 27, 2008 9:17 pm
Forum: General Discussion
Topic: Feeling Crappy and need perspective (Elitynski's Case)
Replies: 258
Views: 9079

Re: Do any of you see a Gastrointerologist

I see a GI for multiple problems, but he has no interest in my pelvic pain, even though about all I have now is rectal pain. I was diagnosed with IBS until the GI did a colonoscopy with a full set of biopsies. I have lymphocytic colitis, a form of microscopic colitis that's only been discovered in t...
by Clay
Sat Jan 26, 2008 6:43 pm
Forum: General Discussion
Topic: Insomnia, Elavil, reduced sex drive (Garyf's Case)
Replies: 68
Views: 915

Re: Cannot sleep

One mg of Xanax seems like a lot. Maybe you could substitute some Elavil. I finally just started Elavil and it really is good. I take .25 Xanax off and on during the day and at night now too, but have been able to stop the Ambien. Much as I hate all the drugs, I do think I'm getting better by not ha...
by Clay
Sat Jan 26, 2008 6:37 pm
Forum: General Discussion
Topic: Feeling Crappy and need perspective (Elitynski's Case)
Replies: 258
Views: 9079

Re: Internal Work & Hemorrhoids

I didn't ever see blood, but my PT found a 'a new lumpy irregular mass' once. She insisted that I call my gastroenterologist immediately and use that exact phrase with him. I was given an appointment within a few days for a flexible sigmoidoscopy exam of my rectum. It was an internal hemorrhoid. Sin...
by Clay
Thu Jan 24, 2008 6:27 pm
Forum: General Discussion
Topic: cp pain goes when I get another illness
Replies: 10
Views: 520

Re: cp pain goes when I get another illness

I spent 5 hours in the emergency room yesterday, even sitting up most of the time without my pads. For about 48 hours I'd had a stricture in my esophagus that became impacted. It was NOT a stress free time, that's for sure! I'm pretty sure I missed a significant amount of my pain meds because by the...
by Clay
Mon Jan 21, 2008 9:16 pm
Forum: General Discussion
Topic: Stress, Cortisol, HPA, CRH, adrenals, immunoneurology ...
Replies: 33
Views: 1614

Re: Stress, Cortisol, HPA, CRH, adrenals, immunoneurology ...

There is a cortisol saliva test that can ordered over the internet in the US. You get 4 tubes in a kit and fill them with saliva at 4 times of the day. It can be ordered from http://www.canaryclub.org for $150. It seems to show a very different picture from a typical cortisol blood test, which pract...