Search found 168 matches

by Clay
Mon Oct 12, 2009 12:17 am
Forum: CFS, IBS, Fibro etc
Topic: My CFS :(
Replies: 4
Views: 647

Re: My CFS :(

I found modafinal increased my pain as much as gave me energy. I use a cocktail of supplements when I want a boost: d-ribose b12 magnesium NADh CoQ10 Acetyl-l-carnitine Sometimes it helps, sometimes not. D-ribose can upset the stomach for some, but you can take quite a bit it if doesn't. It's a more...
by Clay
Wed Apr 29, 2009 7:14 pm
Forum: General Discussion
Topic: How/why do benzodiazepines relieve symptoms?
Replies: 20
Views: 850

Re: How/why do benzodiazepines relieve symptoms?

I'm somewhat defensive about Xanax. It literally saved my life decades ago before I was treated with CBT for my panic disorder. I've been on and off it for decades. I can't take it with vicodin and play tennis. It causes the ball to disappear from sight for critical nanoseconds. My pain is worse tho...
by Clay
Tue Jan 27, 2009 5:58 pm
Forum: General Discussion
Topic: Looking for Pain Management Dr.
Replies: 4
Views: 320

Re: Looking for Pain Management Dr.

I'm glad that is working for you. I'm on a boat load of drugs myself, but it took a long time to work through side effects and get a useful combination. In the end it wasn't the doc who figured it out, it was me, trial and error and time. I just had a discussion about pain mgmt docs with my primary ...
by Clay
Tue Jan 27, 2009 5:44 pm
Forum: General Discussion
Topic: Sitting on an airplane for 6 hours
Replies: 13
Views: 704

Re: Sitting on an airplane for 6 hours

I bought that pricey Thermotex heating pad from Amazon (Ramana's post above) and I like it a lot. When I have sudden pain and have to take drugs, I think it gets the drugs working faster. I also LOVE my Wagan heated car seat pad . It 's only $25 and works really well for those of us who don't have f...
by Clay
Mon Dec 29, 2008 11:52 pm
Forum: General Discussion
Topic: New to the Forum, and DESPERATE!
Replies: 83
Views: 2235

Re: New to the Forum, and DESPERATE!

I take Lyrica and I think it helps. My uro explained that it works on a different part of the nerves - central, peripheral, I can't remember. I had a horrible winter last year with depression and pain, and Lyrica was a life saver combined with Elavil. It's just really expensive. My insurance fights ...
by Clay
Fri Dec 12, 2008 2:00 am
Forum: Pain Management Tx
Topic: COCKTAIL OF MEDICATIONS
Replies: 14
Views: 733

Re: COCKTAIL OF MEDICATIONS

I take 15 mg morphine 2-3 times a day. I don't find it lasts long enough to take just twice a day, but who knows if you guys down under have the same formulations I do in the US. Sixty sounds like a huge amount, but that could mean I don't take enough just as easily as it could mean you take too muc...
by Clay
Thu May 29, 2008 5:37 pm
Forum: Pain Management Tx
Topic: Has anyone ever got complete pain relief from medication
Replies: 12
Views: 1269

Re: Has anyone ever got complete pain relief from medication

Thanks for your concern, Jay. I should have added that my flare was last year and I came out of it and have steadily improved to where I'm taking a fraction of the meds. The Elavil and Lyrica both help a lot. I've avoided taking longer lasting narcotics because I don't get much pain at night. I like...
by Clay
Wed May 28, 2008 3:34 pm
Forum: Pain Management Tx
Topic: Has anyone ever got complete pain relief from medication
Replies: 12
Views: 1269

Re: Has anyone ever got complete pain relief from medication

I had a crash last October that lasted a couple months. I was on 8 vicodin (the max), 4-6 10mg morphines, 2 mg of Xanax. It wasn't enough to do more than keep me alive. I had extreme fatigue, depression and one long anxiety attack, and my colitis roared back. One good thing about being older (60s) i...
by Clay
Wed May 28, 2008 3:14 pm
Forum: Surgery, Injections, WIT, TURP, TUIP etc
Topic: Is prostatitis PNE or vice versa?
Replies: 30
Views: 1717

Re: Is prostatitis PNE or vice versa?

I don't think PNE is a good fit for me either, if it even exists, but my case is pretty different in a couple of ways and I don't think it is classic CPPS either. I've never had any reaction to ejaculation. My urinary symptoms have all long since passed. Sitting is bad, but only in a gradual and del...
by Clay
Sun May 18, 2008 3:41 pm
Forum: General Discussion
Topic: A tip for all you who spasm after peeing
Replies: 9
Views: 552

Re: A tip for all you who spasm after peeing

This is really helping me with post - BM pain. Thanks!
by Clay
Mon May 12, 2008 10:37 pm
Forum: General Discussion
Topic: Belladonna opium suppositories for anal spasm
Replies: 6
Views: 355

Re: bella donna

Interesting. They didn't work for me at all. I think I used B&O (for belladonna and opium?). Others get it them from compounding pharmacies. Where did you get yours? Is there a label?
by Clay
Sun Apr 27, 2008 11:11 pm
Forum: General Discussion
Topic: Stubborn trigger points (Ramana's Case)
Replies: 168
Views: 6774

Re: Onset of multiple ailments - advice pl

I've no idea what your problem is, but I can surely sympathize with not finding a doctor who is willing to look at any body part outside their area of expertise. The debate on medical insurance is hiding a much bigger debate that needs to take place about the medical care we get when we can afford it.
by Clay
Fri Mar 21, 2008 4:58 pm
Forum: General Discussion
Topic: Anyone use a heat pad
Replies: 7
Views: 366

Re: Anyone use a heat pad

I bought a $25 Wagan heated car seat from jcwhitney.com. It really seems to take some of the pain out of driving. Regular pads at home don't seem as useful.
by Clay
Tue Mar 11, 2008 4:54 am
Forum: Research News & Updates
Topic: Adrenocortical Hormone Abnormalities in Men with CP/CPPS
Replies: 158
Views: 6422

Re: Adrenocortical Hormone Abnormalities in Men with CP/CPPS

At 6'1" tall, I don't show any signs of CAH, but I have a sister who was operated on in about 1960 for genital abnormality. I was told it was 'just cosmetic, so she could have normal sex, but she would never have children.' Reading all this stuff gave me goose bumps. Congenital adrenal problems are ...
by Clay
Mon Mar 10, 2008 7:21 pm
Forum: General Discussion
Topic: My progress (Calguy's Case)
Replies: 222
Views: 5256

Re: sphincter pain

Before disappearing on sabbatical, my PT found TPs in my sphincter ani muscle. She seemed to think that it's a good thing when the TPs work themselves down that far - a judgment that sounds a bit like folk lore to me. At least they're easier to reach!