Search found 214 matches

by SickofCP
Mon Nov 23, 2009 8:13 pm
Forum: General Discussion
Topic: My Story
Replies: 41
Views: 1577

Re: My Story

could I ask a really stupid question here? Even if the pudendal nerve is entrapped....isn't it likely that the entrapment is a result of muscular/postural stresses? And therefore you are right back to Stanford/Wise-Anderson Protocol treatments of PT, massage, stretching, relaxation? So who cares abo...
by SickofCP
Wed Nov 11, 2009 5:39 pm
Forum: General Discussion
Topic: My Story
Replies: 41
Views: 1577

Re: My Story

I just wanted to note to you that most Toronto urologists are not very up to date on their CPPS knowledge. I hope that has changed in the last few years, but may not have. I would still encourage you to go to rule out other things, but if this is just plain old CPPS be proactive about getting physic...
by SickofCP
Mon Nov 09, 2009 10:33 pm
Forum: General Discussion
Topic: strange flare up
Replies: 2
Views: 206

Re: strange flare up

thanks webslave,

You were right. I seemed to have resolved it now. It seemed to activate a couple of trigger points. It's amazing how my mind likes to make up catastrophic stories when this stuff happens.
by SickofCP
Mon Oct 26, 2009 5:34 pm
Forum: General Discussion
Topic: strange flare up
Replies: 2
Views: 206

strange flare up

Haven't posted in a long long time here. Mostly because my pelvic pain became primarily a non-issue for me. Although I suffered with some back trouble, my pelvic pain was absent. Last week while taking a shower when the hot water hit my penis towards the tip I felt a sudden pain. And now I have flar...
by SickofCP
Wed Jun 11, 2008 4:47 pm
Forum: General Discussion
Topic: Sam5935's Case
Replies: 73
Views: 1668

Re: Anyone here find Pilates helpful?

Pilates can be helpful, but it is difficult to strengthen muscles that are hypertonic. Many, like me, can't exercise their way out of pain. In your case, your symptoms sound like they are from a very tight quadratus lumborum muscle on the inflicted side. You could treat this muscle to get relief, bu...
by SickofCP
Fri May 02, 2008 6:59 pm
Forum: Research News & Updates
Topic: Adrenocortical Hormone Abnormalities in Men with CP/CPPS
Replies: 158
Views: 6431

Re: Adrenocortical Hormone Abnormalities in Men with CP/CPPS

...I don't know your specific case and I have not met or examined you but let me share something from experience here. I do see a fair number of CPPS patients and there is almost always something that has remained undiscovered either in the history or physical exam. Up to 75% of my patients have su...
by SickofCP
Tue May 01, 2007 1:23 pm
Forum: General Discussion
Topic: Warm baths
Replies: 15
Views: 737

I see,, I think I'm going to make the water hot from now on.. although when I tried hot water before it gave me some weird pain sensations in my pelvic area here and there which annoyed me big time because of my hypochondria. couldn't help but notice that it says you masturbate 2-3 times a day. You...
by SickofCP
Sun Apr 29, 2007 12:28 am
Forum: Diet & Allergies
Topic: Gluten, food allergy and leaky gut syndrome
Replies: 19
Views: 1090

The Brostoff book points out that when you remove foods that are causing problems from your diet, you can have a strong reaction, almost a withdrawal syndrome that your immune system, which has been reacting to the food, sets up. It shows that you are indeed having a problem with that food, and mea...
by SickofCP
Sat Apr 28, 2007 1:45 pm
Forum: Diet & Allergies
Topic: Gluten, food allergy and leaky gut syndrome
Replies: 19
Views: 1090

Seriously, this is the worse pelvic flare I've had in 1.5 years.....after going gluten free. Is this a coincidence, or is there a logical reason? Mark?
by SickofCP
Wed Apr 25, 2007 8:08 pm
Forum: General Discussion
Topic: Possible Help for CPPS in Toronto
Replies: 4
Views: 363

I am glad that things have changed there since I went there 3 years ago. At that time they knew nothing of the SP, and gave me a confused look when I asked about physical therapy of the pelvic floor. However, since DW knows nothing of these therapists (and knows Toronto well, being from the area), I...
by SickofCP
Wed Apr 25, 2007 7:56 pm
Forum: Diet & Allergies
Topic: Gluten, food allergy and leaky gut syndrome
Replies: 19
Views: 1090

Perhaps more people wih CPPS should test themselves. I couldnt agree more. What you have said is why I chose to sort my digestive problems out (gluten etc) prior to trigger point work & dealing directly with CPPS. My previous posts back this up. The effects gluten can have on your muscles not only ...
by SickofCP
Wed Apr 25, 2007 3:00 pm
Forum: Diet & Allergies
Topic: Gluten, food allergy and leaky gut syndrome
Replies: 19
Views: 1090

I had terrible withdrawal symptoms coming off gluten SickofCP. They passed Mark and himself said this was a good sign and proved addiction and therefore an intolerance. Dairy was a problem for me too. And for many people with gluten intolerance dairy is an issue until the gut heals.. Interesting......
by SickofCP
Tue Apr 24, 2007 3:48 pm
Forum: Diet & Allergies
Topic: Gluten, food allergy and leaky gut syndrome
Replies: 19
Views: 1090

I have never had stomach problems, but was recently diagnosed with a gluten intolerance (tested by enterolab). After 1 week of being gluten free, I feel much worse. I didn't expect to be better, but I didn't expect to be worse. Perhaps something in my change in diet is aggravating it. Mark, you ment...
by SickofCP
Tue Apr 17, 2007 4:52 pm
Forum: Diet & Allergies
Topic: Gluten problem or CPPS
Replies: 20
Views: 1744

I've just been diagnosed with a gluten intolerance (did a test through enterolab.com). This explains a lot now. This is why resolving one symptom brings on other symptoms for me, and why my muscles go into spasm so easy. Also this may be why I don't gain weight. I know I've read that it could take 1...
by SickofCP
Fri Jan 05, 2007 5:53 pm
Forum: General Discussion
Topic: Questions Regarding Physical Therapy
Replies: 8
Views: 431

Sleeper Service.....your advice is terrible. Biofeedback is a complete waste of time for those that have their pelvic muscles in spasm. Xatral and valium can give temporary relief of symptoms, but surely the goal is to just get better long term. You say he should try conventional therapy first. In m...