Search found 84 matches

by gifford
Thu Jun 22, 2006 10:41 pm
Forum: General Discussion
Topic: Happy Father's Day!
Replies: 14
Views: 508

update

I wish I had a positive update. I don't know how anyone could live with this for 22 years (webslave). The thought of that scares me. I am trying to do relaxation but don't know how successful it is. I have not been taught the SP way and as A HEADACHE IN THE PELVIS says, you can't pick it up from jus...
by gifford
Sun Jun 18, 2006 8:52 pm
Forum: General Discussion
Topic: Constant burning?
Replies: 10
Views: 593

Prostate burning

Again most of you folks are talking about burning while peeeing. I only had that for the first week. Pyridium took care of that. But after a cysrtoscopy , I had burning in my prostate CONSTANTLY for about a month. Not the whole anus or colon. Was not affected by a BM. Localized to my prostate. Sitti...
by gifford
Wed Jun 07, 2006 6:28 pm
Forum: General Discussion
Topic: Prostate Cancer vs CPPS
Replies: 13
Views: 538

Re: CPPS vs. Prostate Cancer

Re: CPPS vs. Prostate Cancer having same symptoms I had or have all the symptoms listed (they came on very abruptly). Because my PSA was 1.0 and prostate felt smooth , prostate cancer was "ruled" out by my uro. He would not do a TRUS. Are not all of these "cancer symptoms" including lower back and p...
by gifford
Tue Jun 06, 2006 3:50 am
Forum: General Discussion
Topic: biofeedback
Replies: 5
Views: 299

biofeedback

My PT in town here got my biofeedback level down from a 10 microvolts to a 3. which she said was normal. However, I went to the Mayo clinic and the PT there said that 3. may be normal for someone without CPPS but I should shoot for less than 1.0 sitting, standing and lying down. I had mixed success ...
by gifford
Tue Jun 06, 2006 3:39 am
Forum: General Discussion
Topic: Brain scans help think away pain
Replies: 3
Views: 213

Stanford study

Thais is an interesting study. I see it also at Stanford.
Stanford isalsp the home of the SP folks (Dr. Wise, et al. ).
Wonder if the two groups talk to each other?
by gifford
Tue Jun 06, 2006 3:18 am
Forum: General Discussion
Topic: RSA breathing
Replies: 1
Views: 146

RSA breathing

I have read the section on RSA breathing in A HEADACHE IN THE PELVIS aabout 6 times and still don't understand it. Why does this have to be so complicated with continuous pulse monitoring and all? How important is this anyway before relaxation? It seems like any slow relaxed breathing would work. No...
by gifford
Mon Jun 05, 2006 10:24 pm
Forum: General Discussion
Topic: Constant burning?
Replies: 10
Views: 593

prostate burning, constant urge.

Does anything help you constan urge to pee? The less pain that I have the more it feels like I have to pee. Also if I am busy, not focused on it, urge is less but I still have it 24/7. I have for months now. Perhaps the pain masked it befiore \One disadvantage of relaxing to me is that I really feel...
by gifford
Sun Jun 04, 2006 11:36 pm
Forum: General Discussion
Topic: The one symptom that scares me to death
Replies: 25
Views: 2043

sensation of having to urinate literally ALL THE TIME

I don't see that this problem is mentioned much on the this site. Curious if BJE or anyone elese cound find a reason for this sensation of having to urinate literally ALL THE TIME. Valium eliminates the pain but it does nothing for my sensation of having to urinate literally constantly - even after ...
by gifford
Sun Jun 04, 2006 10:28 pm
Forum: General Discussion
Topic: Major flare up after intraprostatic injection (Dr Song)!!
Replies: 24
Views: 1089

Prostatitis caused by microbes ?

Federico Guercini still has his web site prostatitis2000.org in which he claims : "Prostatitis is ALMOST ALWAYS caused by microbes whether they are detected or not by standard laboratory procedures." He seems to have a loot of ideas I have nor seen anythere else. I know most folks on this site would...
by gifford
Sat Jun 03, 2006 7:26 pm
Forum: General Discussion
Topic: Prostate Cancer vs CPPS
Replies: 13
Views: 538

Prostate Cancer vs CPPS

I read that the symptoms of prostate cancer are: * weak or interrupted flow of urine * urinating often (especially at night) * difficulty urinating or holding back urine * inability to urinate * pain or burning when urinating * blood in the urine or semen * nagging pain in the back, hips, or pelvis ...
by gifford
Sat Jun 03, 2006 5:40 pm
Forum: General Discussion
Topic: New review article
Replies: 13
Views: 576

no effective treatment for this chronic pelvic pain syndrome

That is real encouraging news! If there is "no effective treatment for this chronic pelvic pain syndrome". then should we all give up? I guess we are just suppose to jst live with our symptoms and do nothing hoping that something will SOMEDAY be found that might help. Since according to this study t...
by gifford
Sat Jun 03, 2006 5:00 pm
Forum: General Discussion
Topic: Constant burning?
Replies: 10
Views: 593

Constant burning?

Although folks have talked about burning doring urination, I don't see where anyone has discussed constant burning. Near the beginning of my condition last year. I had about a month where it felt like my prostate was burning 24/7 . Putting an ice pack on my annus helped but very little. The burning ...
by gifford
Fri Jun 02, 2006 4:21 am
Forum: Surgery, Injections, WIT, TURP, TUIP etc
Topic: Turp, valium, constant urge to urinate
Replies: 8
Views: 1265

More constant feeling to urinate

I can go up to 5+ hours sometimes without urinating so my frequency is not all that high. ( What is normal frequency (i.e., #x/day) any way?) I know I do not need to go so I try ignore it most of the time. But still feel like I have to urinate nearly all the time even after I do.. It seems when the ...
by gifford
Mon May 29, 2006 1:53 am
Forum: Surgery, Injections, WIT, TURP, TUIP etc
Topic: Turp, valium, constant urge to urinate
Replies: 8
Views: 1265

Turp

RE: You're wondering whether the constant urge to urinate you experience could be a result of the surgery? Why did your uro perform the TURP in the first place? I had extreme had extreme hesitancy and low flow stream which just created more stress and gave me more pain. Looking back, a TURP may have...
by gifford
Thu May 25, 2006 2:44 am
Forum: Surgery, Injections, WIT, TURP, TUIP etc
Topic: Turp, valium, constant urge to urinate
Replies: 8
Views: 1265

Turp, valium, constant urge to urinate

I unfortunately had a TURP before It was realized that I likely had CPPS. Urinating is no longer a problem but the pain and frequency are still there 6 months after the turp (actually laser PVP surgery from which I got retro ejaculation.) VALIUM eliminates my pain but when it goes I feel a constant ...