Search found 413 matches

by kevin
Mon Sep 24, 2012 12:06 am
Forum: General Discussion
Topic: Discomfort in upper back while relaxing pelvic floor?
Replies: 1
Views: 265

Discomfort in upper back while relaxing pelvic floor?

I've noticed that I get an uncomfortable "stretching" feeling in my upper back/ribcage when (1) I just ate a meal, and (2) I'm standing up, and (3) I relax my pelvic floor. Trying to make sense of why this happens. Has anyone else gotten something like this?
by kevin
Fri Aug 24, 2012 6:46 am
Forum: General Discussion
Topic: Video games & involuntary motions
Replies: 1
Views: 250

Video games & involuntary motions

When I played video games as a kid, I had a peculiar tendency. At the most exciting/surprising/panicked moments in the game, when I needed to defend myself, I would involuntarily swing my whole body, as if I was physically in the game. For example, let's say when a bad guy jumped out of nowhere and ...
by kevin
Sat Apr 21, 2012 4:21 am
Forum: Research News & Updates
Topic: Pelvic floor PT effective in women with IC
Replies: 0
Views: 263

Pelvic floor PT effective in women with IC

http://www.ncbi.nlm.nih.gov/pubmed/22503015 Randomized Multicenter Clinical Trial of Myofascial Physical Therapy in Women With Interstitial Cystitis/Painful Bladder Syndrome and Pelvic Floor Tenderness. Fitzgerald MP, Payne CK, Lukacz ES, Yang CC, Peters KM, Chai TC, Nickel JC, Hanno PM, Kreder KJ, ...
by kevin
Sat Oct 23, 2010 6:43 am
Forum: Research News & Updates
Topic: Tanezumab
Replies: 5
Views: 401

Re: Tanezumab

Update: The Tanezumab trial I linked to above has been suspended (along with many others). That seems unfortunate.
by kevin
Sat Oct 16, 2010 2:30 am
Forum: Research News & Updates
Topic: Nerve Crosstalk -- PTNS vs Interstim
Replies: 6
Views: 413

Re: Nerve Crosstalk -- PTNS vs Interstim

I tried both PTNS and Interstim. Neither had any effect.
by kevin
Sat Oct 09, 2010 5:20 am
Forum: Research News & Updates
Topic: Tanezumab
Replies: 5
Views: 401

Re: Tanezumab

Here's a new article suggesting NGF (nerve growth factor) is correlated with CPPS symptoms. Tanezumab acts against NGF.

http://www.ncbi.nlm.nih.gov/pubmed/20883485
by kevin
Fri Oct 01, 2010 4:41 am
Forum: Research News & Updates
Topic: Tanezumab
Replies: 5
Views: 401

Tanezumab

Tanezumab (experimental drug not yet FDA approved) has been mentioned on this forum a few times. Most recently, there was a study (see bottom) that showed that it reduced IC symptoms. I read this article today: http://www.technologyreview.com/biomedicine/26406/page1/ A new class of pain relievers th...
by kevin
Tue Sep 07, 2010 1:15 am
Forum: General Discussion
Topic: Odd glans penis pain/ CPPS? (Alphalifestyle)
Replies: 152
Views: 3896

Re: Erection leads to flare-up

By the way, I wrote a post on this a few months back here: http://chronicprostatitis.com/forum/viewtopic.php?f=37&t=7195 My hypothesis is that for me, the more spontaneous or involuntary an erection is, the less my chance of getting a flareup. Examples of spontaneous erections: - Erections during sl...
by kevin
Sat Sep 04, 2010 4:40 am
Forum: General Discussion
Topic: Odd glans penis pain/ CPPS? (Alphalifestyle)
Replies: 152
Views: 3896

Re: Erection leads to flare-up

I have this problem too. Sex, arousal, or erection is the single worst thing for my pain. My doctors believe it's nerve related.
by kevin
Fri May 28, 2010 7:42 am
Forum: General Discussion
Topic: Poll: How sensitive are your symptoms to sex?
Replies: 2
Views: 298

Poll: How sensitive are your symptoms to sex?

My pelvic pain symptoms get worse after any amount of sexual arousal, even if it's just looking at a racy picture for 10 seconds. Curious if anyone else is this sensitive.
by kevin
Thu May 06, 2010 7:24 am
Forum: Research News & Updates
Topic: Sacral Neuromodulation Effective for BPS/IC
Replies: 4
Views: 396

Re: Sacral Neuromodulation Effective for BPS/IC

Question: is a "sacral neuromodulator" just a medicalized way of achieving the same thing that trigger point massage and conscious relaxation can achieve? Probably different, although no one knows exactly why sacral neuromodulation works. The most common hypothesis is that it interferes with excita...
by kevin
Thu May 06, 2010 7:15 am
Forum: Research News & Updates
Topic: Dr Shoskes takes colleagues to task
Replies: 11
Views: 672

Re: Dr Shoskes takes colleagues to task

Great article!
by kevin
Thu May 06, 2010 7:11 am
Forum: Research News & Updates
Topic: Botox success with BPS/IC
Replies: 3
Views: 274

Re: Botox success with BPS/IC

Encouraging. However, other clinical trials of Botox have not had as dramatic results. Maybe it was the injection methodology used in this study.
by kevin
Sat Mar 27, 2010 3:31 am
Forum: Research News & Updates
Topic: Glazer Intrapelvic SEMG Assessment webinar
Replies: 2
Views: 270

Re: Glazer Intrapelvic SEMG Assessment webinar

I do not recommend Dr. Glazer.
by kevin
Sat Mar 27, 2010 3:18 am
Forum: Research News & Updates
Topic: Study: Elavil not effective for IC
Replies: 5
Views: 314

Study: Elavil not effective for IC

Effect of Amitriptyline on Symptoms in Treatment Naïve Patients With Interstitial Cystitis/Painful Bladder Syndrome. Foster HE Jr, Hanno PM, Nickel JC, Payne CK, Mayer RD, Burks DA, Yang CC, Chai TC, Kreder KJ, Peters KM, Lukacz ES, Fitzgerald MP, Cen L, Landis JR, Propert KJ, Yang W, Kusek JW, Nyb...