Search found 18 matches

by HateCPPS
Fri Jul 31, 2020 4:47 am
Forum: Research News & Updates
Topic: Tryptase-PAR2 axis in experimental autoimmune prostatitis
Replies: 12
Views: 1022

Re: Tryptase-PAR2 axis in experimental autoimmune prostatitis

I had a very high mast cell tryptaste and did the study with cetrizine HCL and cromolyn sodium and had no improvement of symptoms. I also had to do a oral steroid treatment for another non-CPPS issue and didn't really feel much change either. Both MRI and the high mast cell counts seem to indicate i...
by HateCPPS
Tue Jul 09, 2019 4:44 pm
Forum: Research News & Updates
Topic: MRI capable of diagnosing CPPS?
Replies: 3
Views: 1769

Re: MRI capable of diagnosing CPPS?

When I had an MRI, it said I had prostatitis because of the inflammation shown on the MRI
by HateCPPS
Thu May 09, 2019 5:24 am
Forum: Research News & Updates
Topic: AUA 2019 Meeting in Chicago
Replies: 3
Views: 309

Re: AUA 2019 Meeting in Chicago

Hah, its a pretty twisted world we live in. I too have been told that my insurance does not cover “maintenance” PT. Since I’m about 6 years strong with CCPS and doing years of PT....My PT is being considered maintenance now as I’m not on a clear progression to being cured by the PT.
by HateCPPS
Fri May 03, 2019 1:37 am
Forum: Research News & Updates
Topic: AUA 2019 Meeting in Chicago
Replies: 3
Views: 309

Re: AUA 2019 Meeting in Chicago

It's good to know that transgender surgery takes more importance over prostatitis.
by HateCPPS
Sat Oct 13, 2018 1:57 am
Forum: Research News & Updates
Topic: Botox used to ease pelvic pain
Replies: 25
Views: 4573

Re: Botox used to ease pelvic pain

Intra-muscular was the one I was curious about for the Botox.
by HateCPPS
Tue Oct 09, 2018 4:48 am
Forum: Research News & Updates
Topic: Botox used to ease pelvic pain
Replies: 25
Views: 4573

Re: Botox used to ease pelvic pain

So in this Saudi Arabian study they were actually shooting the Botox into the prostate and not the pelvic floor muscles?
by HateCPPS
Thu Jul 05, 2018 6:16 pm
Forum: Research News & Updates
Topic: New study starting (now cancelled)
Replies: 10
Views: 970

Re: New study starting (now cancelled)

Bummer, looks like their stock is doing pretty well now.
by HateCPPS
Fri Jun 22, 2018 9:12 pm
Forum: Research News & Updates
Topic: Mesenchymal Stem Cells
Replies: 4
Views: 642

Re: Mesenchymal Stem Cells

Whether you want to label it as autoimmune or an unexplained reason for inflammation. I think the anti-inflammatory effects of the stem cells is still worth studying for this condition. I know I did have a prostate fluid secretion test that did show very high mast cell counts.
by HateCPPS
Thu Jun 21, 2018 2:22 am
Forum: Research News & Updates
Topic: Mesenchymal Stem Cells
Replies: 4
Views: 642

Re: Mesenchymal Stem Cells

The application would fall under the theory that this problem has some autoimmune type mechanics, where something went wrong (some sort of trigger event) such as bacteria infection, overuse, injury, etc, that set off the vicious cycle... and now maybe the infection or route of the problem is gone, b...
by HateCPPS
Wed Jun 20, 2018 9:54 pm
Forum: Research News & Updates
Topic: Mesenchymal Stem Cells
Replies: 4
Views: 642

Mesenchymal Stem Cells

Anyone do any research or hear any happenings with possibility of using MSCs for this condition? I'm not a scientist, but I have been doing some reading on them. I'm particularly interested in their anti-inflammatory/immunosuppresive effects secreting cytokines. They have been shown to be able to cr...
by HateCPPS
Fri Jun 15, 2018 12:04 am
Forum: Research News & Updates
Topic: New study starting (now cancelled)
Replies: 10
Views: 970

Re: New study starting

I talked to a representative yesterday and it sounds like you need to make like 5/6 visits at these specific test sites to see an ophthalmologist. I read on a different forum that they discovered during animal testing that some animals developed cataracts. Little sketched out on this. That would be ...
by HateCPPS
Tue Jun 12, 2018 11:49 pm
Forum: Research News & Updates
Topic: New study starting (now cancelled)
Replies: 10
Views: 970

Re: New study starting

I somewhat believe that inflammation is the main reason of my problem, and that the muscular aspect is secondary, so this is exciting. Curious of how taking this drug for 12 weeks would differ from taking steroids or heavy doses of NSAIDs? Do we believe this has a large upside over those therapies? ...
by HateCPPS
Wed Mar 14, 2018 6:18 pm
Forum: Research News & Updates
Topic: Cromolyn Sodium and Cetirizine Hydrochloride Clinical Trial
Replies: 5
Views: 1170

Re: Cromolyn Sodium and Cetirizine Hydrochloride Clinical Trial

So I did stop taking the treatment after a week of not noticing much. ..(Really worried about taking medications now after I developed a vestibular disorder (inner ear balance disorder) and not sure if it was caused by medications (either from heavy nsaid, Uroxatral.. Uroxatral and drinking, or cial...
by HateCPPS
Wed Feb 07, 2018 6:18 am
Forum: Research News & Updates
Topic: Cromolyn Sodium and Cetirizine Hydrochloride Clinical Trial
Replies: 5
Views: 1170

Re: Cromolyn Sodium and Cetirizine Hydrochloride Clinical Trial

Almost a week into treatment and not really noticing much at all improvement. Pretty bummed.