Search found 32 matches

by Mountainmac
Tue May 17, 2016 6:18 pm
Forum: CFS, IBS, Fibro etc
Topic: CPPS and Small Fibers Peripheral Neuropathy
Replies: 9
Views: 860

Re: CPPS and Small Fibers Peripheral Neuropathy

Tried Ultrasound guided Corticosteriods injections (16 in one treatment!) last year, didn't work, not a single day. They also hit a nerve as a bonus, which is still hurting at times all the way to my toes. I regret having done this. I'm also no doctor, there is one thing to add here perhaps. Since y...
by Mountainmac
Fri May 06, 2016 8:13 am
Forum: Other treatments
Topic: Palmitoylethanolamide PEA (PeaPure and Normast)
Replies: 8
Views: 745

Re: Palmitoylethanolamide PEA (PeaPure and Normast)

Tried it for 60 days last year (pills and cream), didn't do anything for me (positive or negative). Ordered it here: http://www.rs4supplements.com/nl/
by Mountainmac
Tue Jul 07, 2015 6:46 pm
Forum: General Discussion
Topic: Some questions regarding CPPS symptoms
Replies: 26
Views: 743

Re: Some questions regarding CPPS symptoms

I agree, its starting to feel more tensed already, I discussed it with the PT today and she said that 1 week should be enough for recovering from the injections itself. So to be safe I am slowly resuming my normal exercise routine next Thursday, that's 2 weeks post treatment. Sitting is better thoug...
by Mountainmac
Mon Jul 06, 2015 7:42 pm
Forum: General Discussion
Topic: Some questions regarding CPPS symptoms
Replies: 26
Views: 743

Re: Caught between two medic camps, your opinion?

The 80% is a mix of time passing by and PT. The last few months it has been 80% all the time, translating in buttocks pain when sitting and a spot with persistent and very dominant irritation just below the glans penis. I was hoping to get some extra improvement regarding the buttocks pain with this...
by Mountainmac
Mon Jul 06, 2015 3:22 pm
Forum: General Discussion
Topic: Some questions regarding CPPS symptoms
Replies: 26
Views: 743

Caught between two medic camps, your opinion?

Hi all, 9 months into CPPS I find myself all of a sudden in a position where on one side my Pelvic PT and Myofascial release therapist advise me to stretch and exercise and on the other side a respected dr. who injected some muscle attachments and trp's in the glutes, abdomen, adductors and the piri...
by Mountainmac
Sun Jul 05, 2015 9:07 am
Forum: General Discussion
Topic: My story of the road to CPPS - MajorSky
Replies: 196
Views: 3099

Re: My story of the road to CPPS - MajorSky

I can totally relate to the need to get an as best as possible understanding of this syndrome. Comparing symptoms is one of the things most of us do to get some mental assurance I recon. But it still is a syndrome so there is a lot of variety in each individuals case, it's up to us to interpret them...
by Mountainmac
Sat Jul 04, 2015 4:12 pm
Forum: General Discussion
Topic: My story of the road to CPPS - MajorSky
Replies: 196
Views: 3099

Re: My story of the road to CPPS - MajorSky

Hi MajorSky, You're like us searching for answers and Internet isn't the best place to be when suffering in my experience. When my symptoms started in October I did create an extensive mindmap of all my symptoms and possible causes (Cancer just about anywhere, Tarlov cysts, Hernia, PN, PNE, CPPS, La...
by Mountainmac
Fri Jul 03, 2015 8:24 pm
Forum: General Discussion
Topic: My story of the road to CPPS - MajorSky
Replies: 196
Views: 3099

Re: Open Questions

About the anxiety, I had it also, it faded away as soon as the global pain-level started to drop to 3/10. Had the same questions about cortisol etc. Woke up nothing wrong en then BAM after a few seconds or minutes all symptoms back again. Remember shaking like hell during shaving etc. I didn't have ...
by Mountainmac
Wed Jul 01, 2015 5:14 pm
Forum: General Discussion
Topic: Trigger Points for Tailbone pain
Replies: 28
Views: 563

Re: Trigger Points for Tailbone pain

Hi Majorsky, Since I cannot sit up straight for longer times due to irritation of the PN nerve and then penile irritation etc. I tend to lean back onto sitting on the upper buttocks. This is the Tailbone area as well, not designed for sitting very well. Also lying down for longer times on a couch st...
by Mountainmac
Fri Jun 26, 2015 7:12 pm
Forum: General Discussion
Topic: Trigger Points for Tailbone pain
Replies: 28
Views: 563

Re: Trigger Points for Tailbone pain

Hi MajorSky1, It's better (20/30%) since I started with Myofascial release therapy two weeks ago. Lengthening the muscles etc. Next to that I went to an Ultrasound clinic yesterday, they injected at least 15 places in the Gluteus, Piriformis, Adductor magnus, Rectus ab, and Trochanter area with Cort...
by Mountainmac
Mon Jun 22, 2015 2:11 pm
Forum: General Discussion
Topic: Fasciculations / Spasms
Replies: 6
Views: 250

Re: Fasciculations / Spasms

Just wondering, what's the progress in fasciculations? I think I red on this forum that CPPS is an overload of the nerves in the Pelvic floor causing the muscles to tense up, no nerve damage present. Translating that to regular fasciculations some causes could be considered, I can think of; muscles ...
by Mountainmac
Fri Jun 19, 2015 2:39 pm
Forum: General Discussion
Topic: Fasciculations / Spasms
Replies: 6
Views: 250

Re: Fasciculations / Spasms

Recognize your symptoms, have them all the time around the pelvic and in the buttocks. I had this buzzing at some point high in the sacrum. Buzzing got worse while I used Amytriptyline, now its gone. Sphincter issue not so often, perhaps 1-2 a week.

Don't know if fasciculations are positive though...
by Mountainmac
Tue Jun 16, 2015 7:50 pm
Forum: General Discussion
Topic: Trigger Points for Tailbone pain
Replies: 28
Views: 563

Re: Trigger Points for Tailbone pain

Hi Major, If its pain around the tailbone and (lower) sacrum it might come from tension in the gluteus and spine muscles. I have it. What helps is massaging the spine muscles left and right from the spine from halfway your back down to the sacrum and massaging the triggerpoints in the gluteus muscle...
by Mountainmac
Thu Jun 04, 2015 8:57 am
Forum: General Discussion
Topic: Incredibly well-written primer on trigger points
Replies: 7
Views: 240

Re: Incredibly well-written primer on trigger points

Hi Ceader,

Looking forward to your in-depth review ;-), its well written but will it give new/additional insights or course of action for us? Looking forward to hearing your opinion.
by Mountainmac
Thu May 28, 2015 5:08 pm
Forum: General Discussion
Topic: A strange general, hard to pinpoint ill feeling.
Replies: 4
Views: 216

Re: A strange general, hard to pinpoint ill feeling.

Hi Major,

Had this the first few months, I couldn't even think properly. I found that it was related to the overall pain level. Once the pain was under 4/10 I was able to have a more positive look at the future and felt better all over.