Search found 107 matches

by European
Mon Jul 31, 2017 8:41 am
Forum: Other treatments
Topic: Cryotherapy
Replies: 1
Views: 405

Re: Cryotherapy

I tried it a year ago but did not have good experience...after one-two hours the muscles went to heavy cramps and inflicted flare-up lasted 3-4 weeks...
by European
Mon Jul 24, 2017 2:22 pm
Forum: General Discussion
Topic: Internal Dry Needling safe?
Replies: 8
Views: 487

Re: Internal Dry Needling safe?

No it is not the same, although dry needling is sometimes called "western acupuncture". Dry needling is more based upon the stimulation of trigger point and acupuncture is more working with "energetic levels" etc. Though, some sufferer reported improvement after acupuncture.
by European
Sat Jul 22, 2017 7:51 am
Forum: General Discussion
Topic: Internal Dry Needling safe?
Replies: 8
Views: 487

Re: Internal Dry Needling safe?

I have had dry needling of e.g. Piriformis and glutes, but no substantial relief. I was told that dry needling of pubococcygeus and bulbospongiosus is basically possible, but too risky and my PT did not feel comfortable to do it. Anyway my main troublesome trigger points are deep inside.
by European
Thu Jul 13, 2017 9:18 am
Forum: General Discussion
Topic: Six years after (ppp's case)
Replies: 115
Views: 4446

Re: Six years after (ppp's case)

I have similar problems and completely avoid masturbation nowadays. It seems that it triggers the combination of neuromuscular havoc in my pelvis and anticipatory anxiety related to onset of pain, which is never immediate but 24-48 hours later and lasts for a week or so...Difficult condition and for...
by European
Sat Jun 24, 2017 4:16 pm
Forum: General Discussion
Topic: 6 years with CPPS
Replies: 59
Views: 3971

Re: 6 years with CPPS

Thank you guys for encouraging words. 30th June I am leaving for 10 days to island of Paros, Greece. Greek islands were always a refugium for me where I left behind all the worries, stress, tensions...I believe that this will happen again. I remember, after the first attack of CPPS in June 2009, I w...
by European
Fri Jun 23, 2017 7:25 am
Forum: General Discussion
Topic: 6 years with CPPS
Replies: 59
Views: 3971

Re: 6 years with CPPS

I am pretty miserable right now. I think that after that Dry Needling of sacral nerves in April, my pelvic nerves got more angry and I will not repeat that procedure. A lot of random tingling, burning in the legs, pelvis, thighs etc. Yesterday I did a lot of stretching and massaging my glutes with t...
by European
Thu Jun 22, 2017 4:30 pm
Forum: General Discussion
Topic: 6 years with CPPS
Replies: 59
Views: 3971

Re: 6 years with CPPS

Carbonevo, thanks for encouraging words. I appreciate your insights and in many aspects you are probably right...but I still lean to the assertion, that this is a detrimental combination of local (thrashed muscles, neurogenic inflammation, trigger points..) and systemic (anxiety, upregulation of ner...
by European
Mon Jun 19, 2017 11:18 am
Forum: General Discussion
Topic: 6 years with CPPS
Replies: 59
Views: 3971

Re: 6 years with CPPS

Carbonevo, thank you for your input. I don't think that the issue is entirely psychological, although there surely is heavy anxiety related background. It is a combination of physical damage (trigger point, neurogenic inflammation etc.) and the bad psychological copying with it. My right side is far...
by European
Sun Jun 18, 2017 11:45 am
Forum: General Discussion
Topic: 6 years with CPPS
Replies: 59
Views: 3971

Re: 6 years with CPPS

I will ask my PT about the possibility of hidden hernia, but I think this is not my case. Some more thoughts regarding psychological aspects: In April I was totally down, having had a lot of catastrophizing periods (PNE, nerve related injury etc.), completely wrecking my mind. I had such periods als...
by European
Sat Jun 17, 2017 1:23 pm
Forum: General Discussion
Topic: My CPPS Stories and Experience’s
Replies: 45
Views: 3003

Re: My CPPS Stories and Experience’s

Mild ED is pretty often. My erection is also not that excellent is it once was, but if there was no pain, I would not consider that to be a life altering condition. This neverending exhausting pain cycle is the beast we have to beat. Other things will improve subsequently.
by European
Thu Jun 15, 2017 10:54 am
Forum: General Discussion
Topic: My Experience
Replies: 61
Views: 3213

Re: My Experience

Dont panick, buddy...every flare-up has an end, although I know pretty well how difficult it is to deal with it...first days of flare-up I am always brave and after several days I am begging to stop it finally... The flare-ups are devastating also for me, mainly because of the fact, that most of the...
by European
Wed Jun 14, 2017 8:48 pm
Forum: General Discussion
Topic: Painopolis Podcast Explores Chronic Pelvic Pain Syndrome
Replies: 4
Views: 334

Re: Painopolis Podcast Explores Chronic Pelvic Pain Syndrome

Hallo David, I just finished to listen your story on Painopolis. Very inspirative listening, our stories are similar in many aspects. CPPS is life altering experience, hardly comparable with any other health problem and difficult to explain to almost all non-sufferers.
by European
Wed Jun 14, 2017 8:22 am
Forum: General Discussion
Topic: My CPPS Stories and Experience’s
Replies: 45
Views: 3003

Re: My CPPS Stories and Experience’s

Chriss, I also have weak/split stream (not always), but I am sure that there is no stricture and this is a result of pelvic floor dysfunction. My problems started also as predominantely muscular dysfunction (feeling like having a knot behind the penis, more on the right side), nowadays the predomina...
by European
Wed Jun 14, 2017 7:32 am
Forum: General Discussion
Topic: 6 years with CPPS
Replies: 59
Views: 3971

Re: 6 years with CPPS

thanks for the answer. I had exam with high resolution ultrasound around that place, especially to examinate distal pudendal nerve. I think that an inguinal hernia would be visible there...the examining dr. was a top interventional radiologist in Europe.
by European
Tue Jun 13, 2017 1:26 pm
Forum: General Discussion
Topic: 6 years with CPPS
Replies: 59
Views: 3971

Re: 6 years with CPPS

Thanks MajorSky1, I have read it. I guess it is time for small update. After quite good month of May (more ache than debilitating pain, a lot of relax, walks with my girlfriend in the nature etc.), things are little bit worse right now. June is the worst month in the university (I am a lecturer), we...