Search found 114 matches

by European
Fri Jan 12, 2018 1:14 pm
Forum: General Discussion
Topic: 6 years with CPPS
Replies: 70
Views: 4933

Re: 6 years with CPPS

Still struggling with recent flare-up. First 2 or 3 days of this year were better, but now I am having pretty severe pain in all pelvis. Having a difficult time also in private life, so anxiety and depression might be heavily contributing. What makes me anxious is this neuropathic pain, mainly in my...
by European
Thu Jan 11, 2018 9:31 am
Forum: Research News & Updates
Topic: Pelvic floor therapy effectve for most CPPS patients
Replies: 1
Views: 55

Re: Pelvic floor therapy effectve for most CPPS patients

Unfortunately the article is rather general, delivering very few new things and nothing which can be labeled as a break through. We all know that amongst the abysmal record of various CPPS remedies, the PT is one of the better ones. There are 2 major tasks within this field: 1. to make urologists mo...
by European
Thu Dec 21, 2017 9:03 am
Forum: General Discussion
Topic: 6 years with CPPS
Replies: 70
Views: 4933

Re: 6 years with CPPS

Sure, the cold weather is a contributing factor. But I had flare-up also during summer months, it is almost impossible to detect exact underlying reason why a new flare-up is starting up...I have almost always various aches, pain and discomfort in pelvis but during the "normal" times, the muscle rel...
by European
Wed Dec 20, 2017 8:02 pm
Forum: General Discussion
Topic: 6 years with CPPS
Replies: 70
Views: 4933

Re: 6 years with CPPS

Well, the year 2017 is basically over so it is time for update for the second half of 2017. Early July we went for annual vacation in Greece as always in this part of season. My previous experience was always positive, I have always found some peace in mind there and my condition always improved. Th...
by European
Wed Dec 20, 2017 11:24 am
Forum: General Discussion
Topic: Do I have CPPS? What Caused it?
Replies: 8
Views: 584

Re: Do I have CPPS? What Caused it?

Regarding the question of neuropathic problems elsewhere in the body (beyond the pelvis): I have sometimes (not always) very unpleasant tingling in my right foot. I guess this is the result of nerve-crosstalk in the pelvis, where even the sciatic nerve might be involved. Not the most annoying sympto...
by European
Mon Dec 18, 2017 4:35 pm
Forum: General Discussion
Topic: Jaw problems - TMJ pain and clicking
Replies: 3
Views: 317

Re: Jaw problems - TMJ pain and clicking

I was suffering with TMJ pain for approximately a decade, with severe impact on the quality of my life. Days when TMJ pain was only a minor annoyance were interchanging with days of debilitating pain. After some time I found that this condition is hugely stress related, my pain always culminated whe...
by European
Sun Dec 17, 2017 12:57 pm
Forum: General Discussion
Topic: 6 years with CPPS
Replies: 70
Views: 4933

Re: 6 years with CPPS

Thanks guys, I have been off for a while. Despite recent worsening, the second half of 2017 was much much better than the first half, especially months of August, September and October. I will write detailed update later.
by European
Mon Jul 31, 2017 8:41 am
Forum: Other treatments
Topic: Cryotherapy
Replies: 1
Views: 462

Re: Cryotherapy

I tried it a year ago but did not have good experience...after one-two hours the muscles went to heavy cramps and inflicted flare-up lasted 3-4 weeks...
by European
Mon Jul 24, 2017 2:22 pm
Forum: General Discussion
Topic: Internal Dry Needling safe?
Replies: 8
Views: 556

Re: Internal Dry Needling safe?

No it is not the same, although dry needling is sometimes called "western acupuncture". Dry needling is more based upon the stimulation of trigger point and acupuncture is more working with "energetic levels" etc. Though, some sufferer reported improvement after acupuncture.
by European
Sat Jul 22, 2017 7:51 am
Forum: General Discussion
Topic: Internal Dry Needling safe?
Replies: 8
Views: 556

Re: Internal Dry Needling safe?

I have had dry needling of e.g. Piriformis and glutes, but no substantial relief. I was told that dry needling of pubococcygeus and bulbospongiosus is basically possible, but too risky and my PT did not feel comfortable to do it. Anyway my main troublesome trigger points are deep inside.
by European
Thu Jul 13, 2017 9:18 am
Forum: General Discussion
Topic: Six years after (ppp's case)
Replies: 116
Views: 5481

Re: Six years after (ppp's case)

I have similar problems and completely avoid masturbation nowadays. It seems that it triggers the combination of neuromuscular havoc in my pelvis and anticipatory anxiety related to onset of pain, which is never immediate but 24-48 hours later and lasts for a week or so...Difficult condition and for...
by European
Sat Jun 24, 2017 4:16 pm
Forum: General Discussion
Topic: 6 years with CPPS
Replies: 70
Views: 4933

Re: 6 years with CPPS

Thank you guys for encouraging words. 30th June I am leaving for 10 days to island of Paros, Greece. Greek islands were always a refugium for me where I left behind all the worries, stress, tensions...I believe that this will happen again. I remember, after the first attack of CPPS in June 2009, I w...
by European
Fri Jun 23, 2017 7:25 am
Forum: General Discussion
Topic: 6 years with CPPS
Replies: 70
Views: 4933

Re: 6 years with CPPS

I am pretty miserable right now. I think that after that Dry Needling of sacral nerves in April, my pelvic nerves got more angry and I will not repeat that procedure. A lot of random tingling, burning in the legs, pelvis, thighs etc. Yesterday I did a lot of stretching and massaging my glutes with t...
by European
Thu Jun 22, 2017 4:30 pm
Forum: General Discussion
Topic: 6 years with CPPS
Replies: 70
Views: 4933

Re: 6 years with CPPS

Carbonevo, thanks for encouraging words. I appreciate your insights and in many aspects you are probably right...but I still lean to the assertion, that this is a detrimental combination of local (thrashed muscles, neurogenic inflammation, trigger points..) and systemic (anxiety, upregulation of ner...
by European
Mon Jun 19, 2017 11:18 am
Forum: General Discussion
Topic: 6 years with CPPS
Replies: 70
Views: 4933

Re: 6 years with CPPS

Carbonevo, thank you for your input. I don't think that the issue is entirely psychological, although there surely is heavy anxiety related background. It is a combination of physical damage (trigger point, neurogenic inflammation etc.) and the bad psychological copying with it. My right side is far...