Search found 320 matches

by Caedar
Mon Jul 18, 2016 11:08 pm
Forum: General Discussion
Topic: The story so far (caedar's case)
Replies: 84
Views: 3445

Re: The story so far (caedar's case)

So, here's the status quo: Continued rectal pain, abdominal pain - mostly of the tight/constricted/aching feeling; rectal pain worsened by excess standing/running Erection provokes increased abdominal pain and slight to moderate nausea Continued thigh parasthesia with prolonged sitting Right-sided p...
by Caedar
Sat Jun 25, 2016 7:17 am
Forum: Research News & Updates
Topic: Inflammatory cytokines in CPPS, possible cause of mental health disorders
Replies: 1
Views: 419

Inflammatory cytokines in CPPS, possible cause of mental health disorders

The role of inflammatory cytokines and ERK1/2 signaling in chronic prostatitis/chronic pelvic pain syndrome with related mental health disorders Abstract Mental health disorders(MHD) in chronic prostatitis/chronic pelvic pain syndrome (CP/CPPS) have been widely studied. However, the underlying role...
by Caedar
Thu Feb 04, 2016 4:47 am
Forum: General Discussion
Topic: Pretty sure that sex triggered my CPPS !!
Replies: 10
Views: 752

Re: Pretty sure that sex triggered my CPPS !!

I am now clueless about what trigger my flares. Over time, the parts of your body that need work (the various muscles of the pelvic floor, the various muscles near the pelvic floor, the bladder for IC, the bowels for IBS) will shift. I know they have for me. Much of the time, CPPS won't stay fixed,...
by Caedar
Thu Jan 21, 2016 7:53 pm
Forum: General Discussion
Topic: A Unique Story, My 4-Year Experience
Replies: 40
Views: 1373

Re: A Unique Story, My 4-Year Experience

I'd love to help! However, I'm not exactly sure what your question is. Could you be more specific? I do indeed have symptoms that I didn't have in the beginning, and don't have symptoms that I had in the beginning. Those are all listed in my profile. Mostly, the remaining pain is a dull pelvic/recta...
by Caedar
Thu Jan 21, 2016 7:48 pm
Forum: Other treatments
Topic: Quell - new chronic pain relief device
Replies: 1
Views: 705

Re: Quell - new chronic pain relief device

I've tried it, mostly to see if it would help my fibromyalgia-like systemic symptoms. I haven't found it to do anything major, but I know that some people have had great results. I think the company says about half of users are responders. Thankfully they offer a money-back guarantee, so that's good!
by Caedar
Thu Dec 03, 2015 8:46 pm
Forum: Research News & Updates
Topic: Zinc-associated biomarkers for nonbacterial prostatitis
Replies: 3
Views: 638

Re: Zinc-associated biomarkers for nonbacterial prostatitis

Interesting. I stopped taking zinc a little while ago because I felt like it wasn't doing anything, but over the longer term my symptoms have been getting slightly worse since then. (Although it could be the weather.) Perhaps I'll give zinc supplementation another go; it's incredibly cheap, at least.
by Caedar
Sun Oct 18, 2015 7:33 pm
Forum: General Discussion
Topic: Who else has body wide stiffness/muscle pain?
Replies: 4
Views: 365

Re: Who else has body wide stiffness/muscle pain?

Same here. It'll be interesting to see what the scientific community finds on whether fibromyalgia is or isn't identical to systemic myofascial hyperalgesia/allodynia/spontaneous pain evoked from a period of localized chronic pain in terms of biochemical effects and treatment efficacy.
by Caedar
Wed Oct 07, 2015 12:13 am
Forum: General Discussion
Topic: Prostatitis==>Prostate Cancer?
Replies: 13
Views: 754

Re: Prostatitis==>Prostate Cancer?

Probably a coincidence. Prostatitis, despite its name, often has nothing to do with inflammation of the prostate.
by Caedar
Sun Oct 04, 2015 8:28 pm
Forum: General Discussion
Topic: The story so far (caedar's case)
Replies: 84
Views: 3445

Re: The story so far (caedar's case)

Didn't seem worth the effort after a little while. I might revisit them in the future if my systemic issues become something I want to focus on.
by Caedar
Thu Oct 01, 2015 9:11 pm
Forum: General Discussion
Topic: The story so far (caedar's case)
Replies: 84
Views: 3445

Re: The story so far (caedar's case)

Yup, that resolved a long time ago when I went on hydroxyzine.
by Caedar
Thu Oct 01, 2015 9:10 pm
Forum: General Discussion
Topic: New member, unpleasant situation, looking for feedback
Replies: 16
Views: 508

Re: New member, unpleasant situation, looking for feedback

Well, do the most conservative / least risky stuff first: PT and Flomax. Fluoroquinolones do indeed have some nasty side effects. I couldn't handle Cipro back when my CPPS first started.
by Caedar
Mon Sep 28, 2015 2:06 am
Forum: General Discussion
Topic: The story so far (caedar's case)
Replies: 84
Views: 3445

Re: The story so far (caedar's case)

Bah humbug. I think the weather has some bearing on the parasthesia/allodynia in my thighs. I'm more convinced than ever that it's a form of cold allodynia (perhaps brought on by overuse of menthol-based gels during the onset and solidification of my chronic pain? A curious theory.) because it's sta...
by Caedar
Sun Sep 27, 2015 10:49 pm
Forum: Research News & Updates
Topic: Subliminal messages influence our experience of pain
Replies: 0
Views: 476

Subliminal messages influence our experience of pain

Article here . More evidence that pain depends highly on context and assignment of meaning. Excerpt: Subliminal Messages Influence Our Experience of Pain The brain can learn to associate certain images with more or less pain, even if the images never reach our awareness By Simon Makin | Aug 13, 2015...
by Caedar
Sat Sep 26, 2015 11:35 pm
Forum: General Discussion
Topic: New member, unpleasant situation, looking for feedback
Replies: 16
Views: 508

Re: New member, unpleasant situation, looking for feedback

CPPS can happen or recur because of situations that prompt anxiety and vigilance in the pelvic region. I developed CPPS from anxiety over sexual side-effects related to SSRIs, for example. I doubt it was the sexual activity itself that caused the recurrence, but the anxiety surrounding it. Definitel...
by Caedar
Wed Sep 23, 2015 6:14 pm
Forum: General Discussion
Topic: CPPS - The future
Replies: 3
Views: 302

Re: CPPS - The future

Considering I've found about 90% relief for about 90% of the time, I think we've already got effective CPPS treatments for at least some phenotypes. I think the most important advances we're just starting to figure out are how to reverse the changes to the central nervous system induced by chronic p...