Search found 41 matches

by walla71
Tue Aug 06, 2013 7:19 pm
Forum: General Discussion
Topic: Suffering Alone
Replies: 20
Views: 684

Re: Suffering Alone

Actually looking at my records, I went to Freedman 3 times, then saw major improvement.
by walla71
Tue Aug 06, 2013 6:20 am
Forum: General Discussion
Topic: Suffering Alone
Replies: 20
Views: 684

Re: Suffering Alone

Spencerryan1, I went through a lot of the same things. I live in New Jersey also and visited all the doctors I've heard about on this forum but they couldn't do anything for me except giving me tinnitus from putting me on a month of Cipro. I visited Marilyn Freedman who webslave recommends, twice. I...
by walla71
Sun Aug 07, 2011 7:21 pm
Forum: General Discussion
Topic: No diagnosis yet. Need Help.
Replies: 54
Views: 1328

Re: No diagnosis yet. Need Help.

Well, I'm back to square one with my mental state again. This time I'm fighting tinnitus. I'm as much of a wreck as I was when the CPPS came on last year which is when I noticed tinnitus also. But it wasn't really that bad and I didn't obsess over the tinnitus because I was busy obsessing about the ...
by walla71
Fri Jul 08, 2011 4:01 am
Forum: General Discussion
Topic: No diagnosis yet. Need Help.
Replies: 54
Views: 1328

Re: No diagnosis yet. Need Help.

Burner, I don't remember the forum now. It was last year and I tried to do a google search for it but I couldn't find it. It is generally the same cocktail based on my post a year ago. It could be acting as a placebo but I've seriously stopped taking them for a week only to have my symptoms increase...
by walla71
Sat Jun 11, 2011 3:32 pm
Forum: General Discussion
Topic: No diagnosis yet. Need Help.
Replies: 54
Views: 1328

Re: No diagnosis yet. Need Help.

Hey B, I heard others say that cold season is worse but for me it didn't make a difference. This all started in the Spring, 2010 for me and that's when it was the worst but we're already through Spring, 2011 and it's nothing compared to last year. Vitamin Cocktail: Cystoprotek which has Quercetin (4...
by walla71
Sat Jun 11, 2011 3:59 am
Forum: General Discussion
Topic: No diagnosis yet. Need Help.
Replies: 54
Views: 1328

Re: No diagnosis yet. Need Help.

Hey everyone. I haven't posted here in a while but I figured I'd give everyone an update since many of you contributed so freely when I was having a hard time. I was a headcase last year and just coming here and posting brings back terrible memories. It's been over a year now since this condition ca...
by walla71
Mon Jul 12, 2010 7:42 pm
Forum: General Discussion
Topic: No diagnosis yet. Need Help.
Replies: 54
Views: 1328

Re: No diagnosis yet. Need Help.

I've been getting both abdominal and internal trigger point release every other week. I'm also doing some stretching and light exercising at home occasionally working my abdominals with a Theracane. I haven't done any internal on myself and right now, Marilyn doesn't think it's absolutely necessary ...
by walla71
Sat Jul 10, 2010 9:42 pm
Forum: General Discussion
Topic: No diagnosis yet. Need Help.
Replies: 54
Views: 1328

Re: No diagnosis yet. Need Help.

Burner, I've been through 1 PT session with Marilyn and another 2 PT sessions with another PT at Marilyn's office who I actually think is better or at least on par with Marilyn. After the 2nd PT session, I actually had a full week where I felt 95% better. I had the occasional feeling but I didn't re...
by walla71
Sat Jun 19, 2010 3:20 am
Forum: General Discussion
Topic: No diagnosis yet. Need Help.
Replies: 54
Views: 1328

Re: No diagnosis yet. Need Help.

Hey Burner. Yes, the TP recreated the sensation of that feeling that I need to urinate and the penile discomfort. I was going to another PT before I saw Marilyn and nothing she did got close to recreating the symptoms so like others say, you have to find the right PT. Fortunately I have one of the b...
by walla71
Thu Jun 17, 2010 10:47 pm
Forum: General Discussion
Topic: No diagnosis yet. Need Help.
Replies: 54
Views: 1328

Re: No diagnosis yet. Need Help.

So I visited Marilyn Freedman today and she gave me the 2 hour work over. She found a lot of trigger points in my abdominals and internally. It was pretty damn painful and I wasn't expecting it to hurt so much. I guess finding the trigger points is a good thing... I don't feel any change in symptoms...
by walla71
Fri Jun 11, 2010 8:20 pm
Forum: General Discussion
Topic: No diagnosis yet. Need Help.
Replies: 54
Views: 1328

Re: No diagnosis yet. Need Help.

Thanks for the comments guys. I agree, it is a worthwhile investment whether she finds something or not. I know some people have brought up the fact that men with CPPS have a tendency to have sinus issues. I have had sinus issues on and off for a long time now. I had a bad sinus congestion cold or s...
by walla71
Wed Jun 09, 2010 7:58 pm
Forum: General Discussion
Topic: No diagnosis yet. Need Help.
Replies: 54
Views: 1328

Re: Prostate soft, boggy, and symptoms recreated

I was hoping that one of the "elder statesman" from the site may point me in the right direction. I have an expensive appointment with a Marilyn Freedman next week and want to make sure that it would be worthwhile.
by walla71
Tue Jun 08, 2010 10:10 pm
Forum: General Discussion
Topic: No diagnosis yet. Need Help.
Replies: 54
Views: 1328

Re: Prostate soft, boggy, and symptoms recreated

So I know I've been around the block with urologists but I wasn't happy with Dr. Kaufman so I went to see a urologist who has many IC patients, Dr. Margolis in New Jersey. He gave me a rectal exam and like Kaufman, was able to recreate my symptoms when examining the prostate. He also said it was sof...
by walla71
Tue Jun 08, 2010 12:45 am
Forum: General Discussion
Topic: may stanford clinic
Replies: 18
Views: 615

Re: may stanford clinic

Hey Burner. I've been doing the stretches for a couple of weeks now and I haven't noticed any flare up in urgency. I actually feel a little better while I'm doing the stretches but it could just be because my mind is more preoccupied.
by walla71
Mon Jun 07, 2010 6:35 pm
Forum: General Discussion
Topic: No diagnosis yet. Need Help.
Replies: 54
Views: 1328

Re: Rich - walla71

I made an appointment with Marilyn Freedman today for next Thursday. She called me later just to talk for about 15 minutes. She seems very nice and very knowledgeable not to mention that she made me feel a lot more optimistic. I'm looking forward to my appointment. It will cost $600 for a two hour e...