Search found 148 matches

by strobers
Mon Jun 07, 2010 9:04 pm
Forum: General Discussion
Topic: Hello everyone, it's strobers
Replies: 3
Views: 287

Hello everyone, it's strobers

I haven't been on for quite a few months, not because I'm cured but because I've accepted the disease and have chosen to not let it define me. Since I posted last time I have been doing very well considering. At this point I'm eating everything I used to eat, with the exception of coffee. I'm even d...
by strobers
Tue Mar 10, 2009 7:45 pm
Forum: General Discussion
Topic: I think I did something stupid. Need advice.
Replies: 3
Views: 257

Re: I think I did something stupid. Need advice.

Where on the ankle? You probably overstimulated nerves and by getting stressed over it, you are generating more nerv stimulation and causing more sensations of having to urinate...I seriously doubt you did anything to damage your self...Your having a flair up. That's all...Be as calm as you can..It...
by strobers
Tue Mar 10, 2009 4:37 pm
Forum: General Discussion
Topic: I think I did something stupid. Need advice.
Replies: 3
Views: 257

I think I did something stupid. Need advice.

I have been doing fairlywell the last few weeks with the only real symptom my urgency/frequency (I don't have to run to the bathroom, but I almost always feel like going) I have been using a CES device as an adjunctive to my meditation that I'm doing. A CES device is like a TENS, but not nearly as p...
by strobers
Mon Feb 02, 2009 8:53 pm
Forum: General Discussion
Topic: CPPS is taking my life from me (Brett's Case)
Replies: 253
Views: 6936

Re: CPPS is taking my life from me (Brett's Case)

Question... Benzos. Okay, I have been taking benzodiazepine medications for over a year now. I don't abuse them, I take them every day, but never really taking more than what "works". Here is what I don't get. I am at the point now where I just don't want to take them anymore. I mean, I go to take ...
by strobers
Sun Jan 25, 2009 7:48 pm
Forum: Phytotherapy & Supplements
Topic: Vitamin D deficiency
Replies: 22
Views: 885

Re: Vitamin D deficiency

Ramana, I've been taking 4000 IU of Carlson Vitamin D for the last month and it seems to be helping. I'm having urgency issues as always, but the irritation/rawness/inflamed feeling has decreased a lot. Carlson has a good rep in the supplement community. I also use their cod liver oil and Vit E caps...
by strobers
Thu Jan 01, 2009 7:33 pm
Forum: General Discussion
Topic: New Present: Uteropelvic Junction Obstruction
Replies: 5
Views: 339

Re: New Present: Uteropelvic Junction Obstruction

UPJ obstructions are congenital and they range in severity. The ureter and renal pelvis develop separately in utero (as a fetus) and need to join together. If something happens during that developmental phase, an obstruction where they join can result. UPJ obstructions are in the spectrum of someth...
by strobers
Wed Dec 31, 2008 10:56 pm
Forum: General Discussion
Topic: New Present: Uteropelvic Junction Obstruction
Replies: 5
Views: 339

New Present: Uteropelvic Junction Obstruction

I got a great Christmas present this year. A new medical problem. Thanks Santa! On November 4th I had to go to the emergency room due to major flank pain on my right side. The ER doc did a cat scan and he said I had a kidney stone. He prescribed me a few things, including pain pill. The next day I h...
by strobers
Mon Dec 29, 2008 8:36 pm
Forum: General Discussion
Topic: My progress (Calguy's Case)
Replies: 222
Views: 5196

Re: My progress (Calguy's Case)

Try a trampoline. Jumping is a good all around exercise and even circulates your lymph node system. They are cheap too. I bought mine on Amazon for about $100.00.

S
by strobers
Wed Dec 24, 2008 4:47 pm
Forum: General Discussion
Topic: Electromyography Test (EMG test)
Replies: 29
Views: 826

Re: Anyone Had an EMG (Electromyography Test)?

Can somebody please tell me what type of doctor does this test? Is it a specialist?

Thank you.

S
by strobers
Thu Dec 11, 2008 7:35 pm
Forum: General Discussion
Topic: how many Australians
Replies: 1
Views: 203

Re: how many Australians

You might also check out the IC website to see how many Aussies are out there, as their treatment protocol is very similar to ours. In fact, pretty much everyone agrees that the differences between IC/CPPS are minimal and in fact closely related in many ways. To this day I have never had a clear dia...
by strobers
Thu Dec 11, 2008 7:31 pm
Forum: General Discussion
Topic: Cranberry juice
Replies: 9
Views: 396

Re: Cranberry juice

Drinking cranberry juice with this condition is like adding gas to a bonfire. I live off of filtered water and organic milk. You should definitely stay away from acidic foods and drinks.
by strobers
Wed Dec 10, 2008 10:52 pm
Forum: Research News & Updates
Topic: Intravesical Alkalinized Lidocaine helps IC/PBS
Replies: 3
Views: 190

Re: Intravesical Alkalinized Lidocaine helps IC/PBS

I wonder how it would affect the pelvic nerves and the body in general if it was used via an enema?

A woman on the IC site cured herself by doing colonics.

They have been doing some studies and apparently there is a lot of cross talk between the nerves in the colon and bladder among other things.
by strobers
Tue Dec 02, 2008 10:49 pm
Forum: General Discussion
Topic: Trigger point injections...
Replies: 1
Views: 182

Re: Trigger point injections...

From everything I read, they are just a temporary fix. I also personally think injections are just too intrusive. I can see why people get them though. Chronic pain and discomfort will drive you to do many things you never thought you'd consider.
by strobers
Tue Dec 02, 2008 10:46 pm
Forum: General Discussion
Topic: My case (newbie from Russia)
Replies: 7
Views: 378

Re: My case (newbie from Russia)

I agree with the surgery part. It would be insanity to remove anything out of your pelvic area because there isn't just one organ to deal with. It's a pelvic problem that encompasses everything in there. The people who resort to surgery either have no change in symptoms or additional symptoms they w...
by strobers
Mon Dec 01, 2008 8:07 pm
Forum: General Discussion
Topic: New Member with questions!! (Tascam's Case)
Replies: 62
Views: 1003

Re: New Member with questions- Please help!!

People don't realize how powerful and orgasm is and how it affects your body; especially when you are Type A, high strung, or just generally tense. My whole problem started exactly like yours did. Multiple orgasms daily for week and months on end. On April 6, 2007, I was sitting down stroking away a...