Search found 81 matches

by popburner
Wed Mar 24, 2010 3:55 am
Forum: General Discussion
Topic: Hypersensitivity/Allodynia - Whats the best way to go?
Replies: 25
Views: 952

Re: Hypersensitivity/Allodynia - Whats the best way to go?

Wow! This is my worst problem of all. I've been diagnosed with Sjogren's Syndrome too. This autoimmune disease can affect the mucosa. I have terribly hypersensitive legs, penis, inner thighs, and anus. A bowel movement sends me into a mess of hypersensitive burning sensations. I have always felt all...
by popburner
Mon Feb 16, 2009 3:09 am
Forum: General Discussion
Topic: Tip of penis sensitivity and pain
Replies: 11
Views: 600

Re: Tip of penis sensitivity and pain

p.s. I've sometimes felt like my skin has thinned on my penis and anally (I have a lot of pain there too)...it just feels like it is raw and painful all the time.
by popburner
Mon Feb 16, 2009 3:04 am
Forum: General Discussion
Topic: Tip of penis sensitivity and pain
Replies: 11
Views: 600

Re: Tip of penis sensitivity and pain

JoVo

Your symptoms sound so familiar. I have never found referring trigger points. I'd love some more detail on this trigger point you've found. All the best!
by popburner
Sun Feb 15, 2009 6:53 pm
Forum: Clinics, Therapists & Doctors
Topic: Pudendal neuralgia (Weiss)
Replies: 12
Views: 884

Re: Pudendal neuralgia (Weiss)

Just so everyone knows...Dr. Anderson is no longer at Stanford and has retired...
by popburner
Wed Dec 24, 2008 11:21 pm
Forum: General Discussion
Topic: Gay men with CPPS (Popburner's Case)
Replies: 88
Views: 2033

Skin Changes

I have extreme hypersensitivity/allodynia of the glans penis, shaft, testicles, inner thighs, anus and other pelvic areas. I have noticed that upon self pleasuring myself the last few months that my penis skin chafes and breaks easily. I know neuropathies can change skin, but I was curious if anyone...
by popburner
Wed Dec 24, 2008 8:02 pm
Forum: General Discussion
Topic: Gay men with CPPS (Popburner's Case)
Replies: 88
Views: 2033

Re: What does "pain" mean to you?

I forgot to mention I also have a burning suprapubic area (between belly button and genitals) - I don't think it's IC though because it is more like an extreme sunburn. I also get simultaneous burning in my inner thighs and rectum. It's all like a sunburn.
by popburner
Mon Dec 22, 2008 7:26 am
Forum: General Discussion
Topic: Gay men with CPPS (Popburner's Case)
Replies: 88
Views: 2033

What does "pain" mean to you?

I'm curious sometimes if we are all talking about the same sensations. We all talk about "pain" or "discomfort" - but I wonder if we are talking about the same kinds of physical feelings. For instance, my anal pain is like having burning diarrhea all the time - but I wonder if sometimes others feel ...
by popburner
Sat Jul 26, 2008 6:29 am
Forum: General Discussion
Topic: My Last Month
Replies: 3
Views: 338

Re: My Last Month

I have found hypnotherapy very helpful as well. I just started last week and it has made a tremendous difference!
by popburner
Sat Jun 28, 2008 2:22 am
Forum: General Discussion
Topic: Farr Labs confident of their product
Replies: 2
Views: 232

Re: Farr Labs confident of their product

Webslave, The multi-center trial that just finished for Lyrica showed a significant degree of effect on CPPS pain. It is not yet published, but keep a look out for it...I saw a doc that participated in that study. Also, that multi-center trial was on all types of CPPS patients, and I'm not sure if i...
by popburner
Fri Jun 27, 2008 4:31 pm
Forum: General Discussion
Topic: Power Yoga...
Replies: 7
Views: 434

Re: Power Yoga...

I also want to second the yoga option. It doesn't seem to aggravate my symptoms, though I seem to be a bit different than most in that nothing in particular seems to aggravate them (tried elimination diets, change in behaviors, etc). In my case they just stay come rain or shine. I took almost 4 mont...
by popburner
Fri Jun 27, 2008 12:00 am
Forum: General Discussion
Topic: Suggestion
Replies: 6
Views: 393

Re: Suggestion

ditto Carl
by popburner
Mon Jun 23, 2008 3:27 pm
Forum: General Discussion
Topic: Need to get this off my chest (Garyholc's Case)
Replies: 149
Views: 3605

Re: Need to get this off my chest (Garyholc's Case)

I think the grass always feels greener depending on what your predominant symptoms is....
by popburner
Sun Jun 22, 2008 11:51 pm
Forum: General Discussion
Topic: Just went on a date...so frustrating!
Replies: 19
Views: 904

Re: Just went on a date...so frustrating!

Will do - I am in the midst of traveling but will write up a summary when I return to SF next week - it was thoroughly interesting, heartening, and a bit frustrating all at once :)
by popburner
Sun Jun 22, 2008 4:16 pm
Forum: General Discussion
Topic: Just went on a date...so frustrating!
Replies: 19
Views: 904

Re: Just went on a date...so frustrating!

Sam, I know what you mean about the walking - when i was in NYC in Feb it killed me! I think you're in SF like myself, and I wanted to suggest seeing a pain psychologist. His name is Dr. Israel Rosales, and he's fantastic! He works with a number of pelvic pain patients, as well as folks with all sor...
by popburner
Thu Jun 12, 2008 5:15 pm
Forum: General Discussion
Topic: Gay men with CPPS (Popburner's Case)
Replies: 88
Views: 2033

Re: Gay men with CPPS (Popburner's Case)

gary, how high up is it? I'm able to get above the prostate - it is higher than that?

All the best!